On OFF LABEL Sovaldi and Olysio!

[GrammyA]

In my 3rd week now and feeling really strong.  Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful!  My 2 week labs came in today and ALL of them are in normal range... including AST and ALT.  Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment.  I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!

[candyce1953]

Patients access network provides $7,000 in Copay coverage for these meds, google them, apply online prover the phone

[mike716]

Thanks for the clarification. I'm collecting data and opinions on different insurance plans, since I haven' t got one yet and hope to do S&O therapy.

Cheers!

Mike

[ZapFan]

I said Medicare part D S..u...c...k...s...
the site censored my words.
anyway I say this because it simply is not a good bargain.
high deductables and co pays.
with the solvaldi/olysio combo, I think the deductables and co-pays, and c0-insurance bs.....is like $13,000 ? Can anyone here comment on the out of pocket cost for these drugs and part D please??

[hepcandme]

Grams, what a great post

It has been a great lesson for me to learn that, as a patient, you have to know as much as you possiblly can about your disease and there are many on this site who know Far more about Hep C than some doctors I have met who consider themselves experts

I am so happy for you and for you being around for this new combo after all that you have been through

Sadly, some docs and insurance companies are continuing to recommend the old regimens that someone in this group described as drinking drano simply because of the cost.

It's an interesting ethical question about who gets the drugs and who pays for them:

http://www.nytimes.com/2014/03/16/opinion/sunday/how-much-should-hepatitis-c-treatment-cost.html?action=click&module=Search&region=searchResults&mabReward=cserbias%3As&url=http%3A%2F%2Fquery.nytimes.com%2Fsearch%2Fsitesearch%2F%23%2Fhepatitis%2520c%2F&_r=0

[mike716]

Hi!

You wrote: "Med part D *****, glad I never signed up."

I don't understand this. Can you please explain?

Thanks.

Mike

[ZapFan]

Med part D *****, glad I never signed up. I started Solvaldi, Oliysio, Ribaviran combo, as per the cosmos study... Yesterday, May 1st. Side affects, headache and tiredness. Next day much better.
Took 3 Months after first gastro appt. to recieve all 3 meds. lots of paerwork, phone calls, faxes, letters of neccessity from the doc... so, I jumped thru all the hoops to get them thru each drug co. patient assist. programs. Just be patient it's a long process.
I tried the interferon/Ribavirin tx. twice, never making it past 8 weeks.
That was 8 years ago, and I said to myself, screw this poison, I'll wait for a cure.
I set up Gmail alerts for Hep c, and found out about sovaldi.
I bought stock in the Co., and waited for fda approval.
I have cirrhosis, Not sure how bad. I'm hoping it works and I feel confident it will.
Bllod tests will be: 2 weeks, 4 weeks, 8 weeks, and 12 weeks, Then finally at 6 months after tx. if it is undectable at that time, you are cured.
I wish everybody good luck with your treatment. I can answer a lot of questions if anybody need an answer to something, let me know.
And I will keep all posted on My TX. here.