Aa
SVR--One More for Team Blue
This is really a miracle!
Got the news today that I have SVR'd. Not sure if anyone remembers, but I went into the boceprevir trial naive. My first 4 week results were very uninspiring. I went from 1320K (at the beginning) to 940K (2 wks) to 629K (4wks) which is about a third of a log drop when I started the blue pills. From there I dropped through the floor to <25 but still detected--which means it was not quantifiable by the test but still there. I stayed at <25 DET for the next two tests and then finally went UND at week 10. I had a blip at week 24 where I tested <25 DET again but on a repeat test I was UND and have been ever since. I finished up last November and have been steadily feeling better. Almost all my blood counts are back to where they were when I started except that my cholesterol numbers are higher. Going to have to deal with that. But that's okay. :)
I had various sx during treatment, including almost immediate anemia when I started the blue pills. That combined with that unmistakable awful taste (and the VL drop) assurred me I was getting the real thing and not the placebo. I was re-randomized at week 28 and after that I was getting SOC and the placebo only.
Thanks to everyone here for your support. Thanks for the jokes. Thanks for posting studies. Thanks for all the first person accounts of handling the disease and handling the cure. I knew exactly what I was getting myself into when I started treating and that really helped. It wasn't as bad as I feared or as good as I hoped. The one thing I thought would happen for sure was I'd lose my thyroid and that didn't happen. I guess I thought it would because I have thyroid issues on both sides of the family. But somehow they skipped me!
The trial I participated in was administered through Cedars-Sinai in LA. They took marvelous care of me. I think the world of them. There is a 3 year follow-up and I plan on participating.
Got the news today that I have SVR'd. Not sure if anyone remembers, but I went into the boceprevir trial naive. My first 4 week results were very uninspiring. I went from 1320K (at the beginning) to 940K (2 wks) to 629K (4wks) which is about a third of a log drop when I started the blue pills. From there I dropped through the floor to <25 but still detected--which means it was not quantifiable by the test but still there. I stayed at <25 DET for the next two tests and then finally went UND at week 10. I had a blip at week 24 where I tested <25 DET again but on a repeat test I was UND and have been ever since. I finished up last November and have been steadily feeling better. Almost all my blood counts are back to where they were when I started except that my cholesterol numbers are higher. Going to have to deal with that. But that's okay. :)
I had various sx during treatment, including almost immediate anemia when I started the blue pills. That combined with that unmistakable awful taste (and the VL drop) assurred me I was getting the real thing and not the placebo. I was re-randomized at week 28 and after that I was getting SOC and the placebo only.
Thanks to everyone here for your support. Thanks for the jokes. Thanks for posting studies. Thanks for all the first person accounts of handling the disease and handling the cure. I knew exactly what I was getting myself into when I started treating and that really helped. It wasn't as bad as I feared or as good as I hoped. The one thing I thought would happen for sure was I'd lose my thyroid and that didn't happen. I guess I thought it would because I have thyroid issues on both sides of the family. But somehow they skipped me!
The trial I participated in was administered through Cedars-Sinai in LA. They took marvelous care of me. I think the world of them. There is a 3 year follow-up and I plan on participating.
Let me be the first to congratulate you on your good news!! It sounds like you put on quite the fight.
Things can only get better from here on.
Kitkat
Things can only get better from here on.
Kitkat
Congratulations GB !!! you deserve that SVR !!!
Thank you for sharing your story , and for your help in paving
the way for those who may follow and need to go for boceprevir.
All my best.
Many Hugs
Elaine
Thank you for sharing your story , and for your help in paving
the way for those who may follow and need to go for boceprevir.
All my best.
Many Hugs
Elaine
Oh, such terrifically cool news! A hearty congratulations to you; it’s official now! I remember you posting in here before I got here, so you’ve been working on this for such a long time. Very, very good news, gal!
Bill
Bill
Congratulations to you! Thank you so much for sharing your news and for your encouragement.
What an ordeal, but you made it through and you did it! You will be an inspiration to all those who see your posts.
I am really happy for you and wish you well!
:D
Vicky
What an ordeal, but you made it through and you did it! You will be an inspiration to all those who see your posts.
I am really happy for you and wish you well!
:D
Vicky
wow thats awesome,good on ya and i hope u live a long happy life.i just got the good news myself 2 wks ago tht i am svr too,wow wht a relief it was.i too didnt end up with any lingering sx after tx but had plenty on tx but i am jogging n exersising n tryin to keep fit n healthy now as i still have liver aches so thank god for the treatment i say cos id be a goner in next 10 ys otherwise.
wow n u had a bit of a fight to get ur UND but u finally did it,thats sooo cool,i love hearing ppl get there SVR.
wow n u had a bit of a fight to get ur UND but u finally did it,thats sooo cool,i love hearing ppl get there SVR.
I'm delighted for you GB. What awesome results we've seen with the PI's Those blue meanies are the way to go and they can't get here soon enough.
Wishing much happiness and good health.
Trin
Wishing much happiness and good health.
Trin
I don't visit MH often anymore but I'm sure glad I did today to read your great news. Yep we did it, and life is back to normal. Life is good living without that nasty virus! Now go and get on with your life--we have lots of making up to do !
Congrats to you, GreatBird, on your SVR and on being such a great lady.
I knew you'd been here on MH a while but had no idea it's been even longer than Bill! 2002, whew!
I was still playing 'ignore and wait' in 2002 instead of 'watch and wait' but I think you watched and waited and opted for the PI's, when SOC was readily available to you. With our similar profiles, I wish I'd have been better-informed and gone that route, despite the unknowns.
Thanks for posting and sharing the details of your winding path getting to UND and then on to SVR.
Susan
P.S. I remember that story we shared about our both getting gamma globulin shots to do with our travels about 1970 and the nasty amoebic dysentery, as well as the hepatitis B issues. Strange coincidence and then neither of us developed much fibrosis after all those fortyish years. Was it something about those shots, I'll always wonder. (Course, you had that under the table fleeing incident with that nurse!)
I knew you'd been here on MH a while but had no idea it's been even longer than Bill! 2002, whew!
I was still playing 'ignore and wait' in 2002 instead of 'watch and wait' but I think you watched and waited and opted for the PI's, when SOC was readily available to you. With our similar profiles, I wish I'd have been better-informed and gone that route, despite the unknowns.
Thanks for posting and sharing the details of your winding path getting to UND and then on to SVR.
Susan
P.S. I remember that story we shared about our both getting gamma globulin shots to do with our travels about 1970 and the nasty amoebic dysentery, as well as the hepatitis B issues. Strange coincidence and then neither of us developed much fibrosis after all those fortyish years. Was it something about those shots, I'll always wonder. (Course, you had that under the table fleeing incident with that nurse!)
A huge congratulations!!!! Yiiippppeeee!!!! You made it. This is such a happy day!!!
it's May and the news is here and the news is very good.. a happy ending indeed! it's about 7 years now that I've been reading your posts here and this is the best one yet. Many felicitations.
I think you may well have dodged a couple of close ones too - that lukewarm w4 VL clearly suggests you were a likely candidate for non-responder camp on soc, and the persistent very low level VL suggests your remaining ifn response had to struggle to eliminate the boce-resistant mutants. All history now - enjoy!
I think you may well have dodged a couple of close ones too - that lukewarm w4 VL clearly suggests you were a likely candidate for non-responder camp on soc, and the persistent very low level VL suggests your remaining ifn response had to struggle to eliminate the boce-resistant mutants. All history now - enjoy!
Most important - congrats!
But, I think it's great that you are going to participate in the follow-up. I think it's great that there even is one.
But, I think it's great that you are going to participate in the follow-up. I think it's great that there even is one.
That is Awesome News!!! Thanks for posting, very encouraging, Can't wait to get started with either Boce or tele, and post my own SVR testimony:)
Just great greatbird, quite a few of us started around the same time and the news has been fantastic so far.............. Enjoy
cando
cando
Well done!! Well done!! and Very Well Done!!! Congrats GB - that's very awesome news.
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