Can I delay my shot by 6 to 9 hours?

[hcvJames]

Because of a ongoing snafu (guess that's redundant) at the hospital I'm nervous about getting med's on time for next week's shot. To give myself an extra day I was thinking of delaying TONIGHT'S shot by 6 or 9 hours and if have to another 6 to 9 hours next Tue. This in effect would give me an extra work day to get the med's in on time.

Tonights shot is scheduled for 23:30. If I delay it to 08:00 tomorrow. Then if I must another 8 hours the following Tue. would give an extra work day to get the meds in.

As you can see I have little confidence in the people treating me. Hell I don't even know who is treating me. Here's an example. After learning how to look up the codes for blood draws, like CBC & TSH, it appears one of the early blood draws was coded with test for a pregnant woman! I'm a guy.  

[hcvJames]

Finally got the med's today. With just two days to spare. This is just cutting it way to close for my tastes. If I hadn't called and called and called, any and every one possible there this wouldn't have happened. There were calls to three different people at the hospital never returned, they wrote the script wrong and failed to respond to Roche's fax for clarification. I had to find out myself and tell them ... grrrr ... then Fedex more or less arbitrarily decided 'overnight' meant six days later ! Anxiety level went through the roof. Of course it had to go out then .. so it did. Her problem was she had a poor grasp of geography. ... well, it went out .. without a doubt this is the least of what so many others go through. These last three weeks seemed epic trying to get my blood draw changed (failed), and med's delivered (won!)

Next two and a half weeks I don't want to hear or think of those people.

On Feb 17, the VL will be tested and I suppose that'll determine future treatment.

Thanks

[zrjl]

My Doc told me that  you can take the shot within a 24 hour window if necessary.

[epiphiny]

Good for you, that seemed to be the wisest choice. It's so important in the first few months of treatment to give your body as much chance as possible to get to UND as soon as it's able.

And yes that is very encouraging, could be that your numbers are stabilising, and once you can get onto the correct blood draw schedule they should be even better!

I simply can't imagine a responsible medical team not providing you with the meds required to continue your scheduled treatment.

If your back is against the wall would you be able to buy a single shot from the pharmacy that is filling your script and enough Riba for a few days until you your order comes in?  Perhaps investigating that and getting a backstop in place will ease your anxiety about this.

All the best, keep us informed.

Epi :)

[hcvJames]

Not to put the decision off on you but I did take your advice by taking the shot on time.

[hcvJames]

Sorry, Yes.

Previously draw was 51. This last one, a day and a half after shot, it was 53.

I believe it was because this board's advice to exercise. I walked briskly 2 miles a day for 5 of the 7 days prior.

Sure it's a very fractional increase, but it is more encouraging than going down by 2.

Thanks for asking.

[epiphiny]

So have you had the results back?

[hcvJames]

The one I mentioned above? No, I just realized what the code was about a few days ago.

If you are talking about the one from a week and a half ago or so ... short answer no. Essentially, they gave me a impossible choice. Either come in when they demanded it, the 20th, or take the chance the med's wouldn't get here on time. I had wanted to come in TODAY, the 25th, and all I wanted to know is if it would give time for a new supply to make it by Feb 1st, next Mon. They either couldn't, wouldn't, or didn't want to find out. I had to go in the 20th.

Guess what?

It's the 25th. And they haven't properly ordered my med's yet. Spent all day today calling anyone and everyone. Not a one called me back. It would take them 5 min. to Fax Roche and straighten it out. Roche had sent them a Fax the 23rd Sat., requesting clarification of UMC order, like dosage, quantity, like DUH .. The administrative part of the hospital was off Sat. but they had the Fax sitting there all day today PLUS my numerous calls, (5).

Jiminy Cricket, like people need extra stress this puts on them. If this goes on now, I'm wondering, if my body allows me to continue tx, what happens when the big symptoms kick in. Grrrr... haha geeze I don't know, sorry

[epiphiny]

I would just take it as usual today and delay it by an extra day if you have to next week.  No point in second guessing what you don't know is or isn't going to happen.

Btw, did you get your blood draw sorted out?

Epi.