Sovaldi/Olysio Side Effect

[Lovesmygolden]

I took my first dose of Sovaldi/Olysio this morning with breakfast. That was about 8 hours ago. The only thing I've noticed is a "tightness" in my head, it's not severe but I was a bit concerned. Anyone else experienced this while on the treatment? Feeling so blessed that Medicare Part D approved the drugs.

[Groupergetter]

Happy for you this was approved, and that you got started.

Monday this week I was also Blessed to start this same regimen.   I have not felt any "tightness" in my head, however about 5 hours after taking my first dose it was as though I felt something in my body that said "stop".  It was almost as though the food source for this nasty virus had been cut off cold, and I could feel it.  I know that sounds strange.....but true.  

Since, I've had headaches and insomnia but have been able to continue working. I pray this will bring SVR to you, me, and all others that have this dreaded disease.  Research is making huge strides in the treatment of HCV.  So many have had to suffer the agony of Interferon and Ribavirin only to be uncured.  I hope and pray that in the near future there will be easy to tolerate meds, that will bring SVR to all.  

[Lovesmygolden]

Yea, I didn't sleep well last night but figure that's a small price to pay! Another weird and wonderful thing, this morning I woke up with energy for the first time in several years. Can't believe it happened that fast but I think already the virus are weakening.....Good luck with your treatment too!

[truredhead]

Many Thanks to the ones starting treatment. I start next week and it is good to see how others are getting along! It makes me feel better to hear your comments!

[sljl]

Hi, I too just started the Olysio/Sovaldi yesterday.  I didn't feel tightness in my head but a few hours after I started, I seemed to taste or have a medicinal taste in my mouth but went away after I ate.

Also, today, day 2, I feel more energy.  I was able to do the laundry, make the bed and other chores without huffing and puffing.  It feels as if the virus is under attack and not me.  If so, yeah!!

All in all, I'm not feeling any sides.  I did notice that when I'm outside for a short bike ride, my face was sensitive to the sun even wearing a hat.  

Let us all go for SVR and get rid of this thing.  

sljl

[GP7852]

Gotta tell you Goldy,10 days into sovaldi-olysi and nothing,nada,zilch! No headaches,sleeping well,plenty of energy,not even dehydration.Same as taking mentos.I cant explain it but I certainly am not complaining.Beats the heck out of that poison known as ribavirin.That stuff was chemo,yuck
                                 Good Luck   Glen

[GINAMETRO]

God Bless you ALL and wishing you a sustained SVR/Cure.  I started my treatment January 4 of this year and completed my twelve weeks with no side effects at ALL.  I feel truly blessed and my six week post treatment is still negative.  The next step is to have labs redone in 6 mos and if all is clear...I'm cured.  I am 57 year old African American female...treatment naïve, Genotype B and stage III liver disease....the FDA could not have passed these two drugs fast enough in terms of timing as we know the next step would have been cirrhosis of the liver.  I have a great appetite now that has gotten me into a little trouble with weight gain...mild weight gain but I haven't had an appetite in years.  Again, good luck with your treatment.

[candyce1953]

Hi I just finished Sovaldi and olysion 4 weeks ago, started February 11th , a  bit behind you

I am Caucasian female, , but with a TT alle
with geno type 1B, also stage 3
I have been undetected since week 4, so I am hoping for SVR

Which is 3months not 6months with this protocol,

so yours should be coming up very soon
Would you please share results

Here is rooting for you, me and everyone
Xo CH

[candyce1953]

Hi loves golden I finished  Sovaldi an olysio 4 weeks ago
Headaches are a known side effect, if that is your possible tightness?
I was fortunate to not really have headaches, no rashes, almost no naseau either

I did have enormous fatigue though, weak as a puppy so slept allot, and hot flashes, and out of 84 days of treatment ONLY 6-7 nights of insomnia

Also did have runny nose for 3 months

no aches or pains
So not bad, as I was able to rest
I went undetected at 4 weeks, here is hoping for SVR in 8 more weeks

Good luck
Ch

[GINAMETRO]

Hi

I would be more than happy to share results.  I will follow up in six months and I'm hopeful I will have a SVR.  I went negative after two week treatment and diagnosed in 1997 accidentally and not a clue how I got infected  Please explain "TT alle".  I'm glad I waited for the new generation of drugs..it was always about quality of life for me.

Wishing you the best w/your treatment and SVR in the next 8 weeks.

[candyce1953]

Great let's compare notes in 8 weeks

You will know if you are SVR then too, since it is 3 months after end of treatment

TT is the hardest to treat alle, ( CC the easiest)
So fingers are crossed
Xo Ch

[Sovaldi13Newbie]

Hi, I also have been experiencing sides on this Sovaldi Olysio combo, but I might be a strange case because I'm a bone-marrow transplant. It comes and goes as far as sides, but fatigue is a biggy. Light sensitivity for my eyes and sometimes a little blurry (but that would happen with the hep c on occasion) and yes, a pressure in the head that I guess is a headache. Joint pains (just occasionally) and a lack of focus that is even worse than the hep c, but not all the time. These sides come and go for me, but I feel that overall it's emintenly doable and I'm glad most people report hardly any sides at all! This Wednesday I'll have 6 weeks down, yay! On to SVR to all of us. I am 1b and treatment naive.

[Sovaldi13Newbie]

Oh, and I also feel that the hep has left my body for some reason. That shadow feeling of it? It's hard to describe.

[944s]

I have finished treatment for some time now.I am UND and get m final VL taken in July. I feel great.
Something I did was take the Solvadi at night.

[Mw1957]

here here! Im with you on that! Can't wait until my husband can finally start! I don't know what the hold up is but out heptalogist said wait til October.....? He has cirrhosis/hep c now....I am kinda gettin' worried! Maybe cuz were fro

[Mw1957]

sorry got cut off...cuz we're from Canada and he is hoping by October to have either 1 something covered by way of $ or some results from people whom have taken this drug with cirrhosis?
What does treatment naiive mean anyone?

Does anyone know of anyone whom already has cirrhosis along with their hep c and is taking the cure? And if so what is the cure comprised of?

Thank you

[nursehepc]

Hey,

I changed from taking my Sovaldi in the AM to PM because I felt that it was causing my brain fog issues and that seemed to help. That said, the brain fog issues may have cleared as my body got used to taking the Sovaldi/Riba (I am day 11 - 73 more days to go)!!!

Jo

[Lovesmygolden]

Treatment naive means you have never before taken any Hep C treatments. I also was treatment naive prior to the Sovaldi/Olysio combo. The cure is being virus free and sustaining that for 3 to 6 months post treatment. There's an over 90% cure rate happening with this combo. Don't delay any longer than necessary and best of luck to your husband!

[lindah57]

In March it was confirmed Hepatocellur Carcinoma Dr. going to treat and start the new HepC treatment as my Medicare will pay. I currently am seeing a transplant Dr at the OU medical center in OKC,OK. Have you gone through this and I was a non-responder to the interferon & ribavirin. Went through all the side effects. I'm also a genotype3. He says my numbers are good. I've been on morphine for a year. My liver is cirrhotic.

[lindah57]

I was diagnosed end stage in 07 with cirrhosis and now have HCC (Liver cancer) Dr going to treat and start treatment if it works then eventually transplant so yes they can treat. That way you will be virus free if you have to have transplant in future.

[cackywalker]

My husband just started the Sovaldi/Olysis today.    I have been reading the posts, what does SVR stand for?  

[Sovaldi13Newbie]

So sorry to hear this, I hope this works for you and you get your transplant, etc...They are performing miracles now! Best of luck to you and hugs!!!!

[jacattack44]

sustained viral response or having no detectable virus in the blood 6 months post-treatment, which is considered a cure

[reneew0801]

Hello everyone.. I've had Hep C for 30 yrs. Got hit be a drunk driver and had to have a blood transfusion, and that was before they tested for Hep C. Anyway, years ago I tried the Peginterferon & Ribiviran tx and it pretty much wiped me out. After being hospitalized the 2nd time, my dr. discontiued the tx. and told me that in a few yrs there would be sumthing new coming out that would probably be more tolerable. Well the new treatment is out and I am on week 2 of Sovaldi/Olysio/Ribiviran tx. the 1st week was amazing. No side effects. Week 2, well, my drugs and body is at constant war. Itching, nausea, frequent bowel movements, fever, fatigue, irratibility are some of my side effects. But as God is my witness, I am going to finish this round of tx. This disease has run my life for over 30 years and its time to put it to stop..

[Suzzie51]

Just stared solvaldi /Olysio  12 week treatment 7/31 /14  feeling blessed. Little foggy and skin irritation but so dar ok. Tried interferon treatment 10 years ago but didn't work for me. Good luck to all and I will share my progress