Not singling anyone out but it just infuriates me when everyone wants to blame every kind of illness/symptom on poor diet and life style these days. Yes that can be the cause of a whole slough of things but does that mean we are going to say that people with cancer, fybromyalgia, heart disease, diabetis, cronic fatigue syndrom, thyroid problems, lymes disease, ( I could go on but I don't think I need to ) are all of thier symptoms from poor diet and unhealthy life style?!! As far as heppers symptoms not being lagit or not proven to be actual hepC symptoms. Well I spent many of hours, days, weeks, months looking this up and doing research and there are many well credited medical facilities that beg to differ also a simple pamphlet from the health dep explains all the Hep C symptoms you can experience ( NOT just from cirrosis ) I got my pamphlet in the mail right after I was diagnosed. How do you think they pin pointed symptoms to any kind of illness? They connected thousands of people with the same illness reporting the same sypmtoms along with other medical research and it's NOT just heppers that have to go through big farm companies to treat. Anyone with any illness that has to take medication has to go through them. How else would ANYONE get the medciation they need? Yes I agree they're money hungry and maybe a little corrupt but that doesn't make our symptoms any less real for goodness sakes.Further more I've read about and talked to many people that have led a super healthy life style all there lives even doing triathlons and marithons and the Hep c just wipes them out with fatigue and other not so fun symptoms. I've been fighting being sick and fatigued for as long as i can remember and once i FINALLY got a doc to take me seriously it took her two apts and two sets of labs in a matter of maybe a few weeks to find out what was going on and wouldn't you know all the not so taken seriously by some people hep c symptoms all matched up with what I had been dealing with for YEARS. Turns out I have had it for about 20/21 years and am in stage 3 fibrosis. Currently treating with tripple tx.
Once again not trying to single anyone out or get into a war of words just putting it out there.
Proof is in the pudding. I have three people close to me that have treated successfully and every one of them have told me that I'm going to be amazed at how much more energy I am going to have once I get through this. That is where the truth comes in. I was like Karen, having to nap at 10:30 and 3 to get through my day. I'm 16 weeks into treatment and I am already at a place where I have more energy than when I started. Also, my eyegrows and eye lashes are growing like crazy, hair is turning darker, and my eyesight changed or the better (I now have depth perception). Seems to me after 27 years of having hep c was quietly taking its toll on me in many ways.
Constant fatigue is what caused me to discover the Hep C as well.
It hit me as I started to go into cirrhosis. Yes fatigue is a part of it all. I had a rash for years on my side. I haven't seen that rash since I started and now have finished with treatment and yes the night sweats were horrible. I don't have them any more. The thing is this symptoms can be from so many things, but to me it was all related to the hep c or the liver damage and my liver was still compensated. I think it just filter out the poisons as well and that causes the rashes or itching some get and the night sweats to me seem to be my body fighting this disease. The worse was never waking up feeling well, always feeling sick and getting out of bed and moving was hard. I have to say that is all improved since going through treatment. Of course I'm still waiting the six months out and hoping the 24 weeks was enough.Honestly for me my body just wouldn't take anymore of the drugs. I started out so well but I could tell my body was telling me it couldn't take anymore. I really admire people who can get through it long term.
That's the attitude to have Karen...good luck in your SVR.
Stay strong all
Way to hang tough. We all just get by best we can w what we know. One of the reasons I'm scared of Promacta is that it causes liver damage.. Hell O! G4/S4 already. Still lol. Just watch me beat this AND live to a ripe old age.
Using the RIBA rage against the virus,
Karen :)