Aa
more doubt
I was just through my 39 week and of course 2 times I was checked and had less then 5 on the virus.I'm sure there are plenty of answers here but need to ask a few again.Does all of us get the fever through the end? I know I'm still struggling with it.I'm also the guy that has lynchen planis and the rash looks better but I dont think it will ever disappear and since there is no cure, the sun makes it look better. I'm also the guy that has been taking the trail med. for platelets, and have kept them around 120 so That worked from what I see.I'll be going to see the big shot doctor on the 19th in Miami and need to get some ? answered but when you think of it I'm not around to ask.I have asked this before and I'm concerned more with my platelets then anything else at the moment, but I wonder how many of you have had this problem cause of the liver and the spleen and what were the results.I also would like to know, since my wife thinks I'm cheating, what about sex? does this come back? or am I going to live the rest without?I tried Viagra a couple of times and NOTHING, but now I can blame this on portal hypertention but never discussed it with a doctor. They give you such vague answers so maybe I can get some true life answers here.AUG. 14 is my last day but was told they will monitor me until DEC., JAN.Well I know I had a bunch but cant thing of them right now and because I thing my mind id going so its not easy.Will the muscle mass come back or do I have to look like an 80 year old? Sorry for making this too long but I'm sure i need more help.Thanks folks
nope, I stayed on tx for about six months and had fourteen separate blood transfusions, gamma globulin, neupogen, etc. I think I did drop my riba down to 800mg at times during the latter part of my tx. I was an acute patient, so even though I was a geno 1b, I reached SVR in a shorter period of time. I'm about 14 months out now and still SVR. I did spend about half of my treatment in the hospital. Which wasn't so bad actually.
So whats next for you. Did they put you on any other med? for me the DOC said if the virus comes back, I will be helped for another treatment and the last is a transplant.
I dealt with low hemaglobin and low anc, and at least once with low platelets. My bone marrow actually shut down at the end there. Everything has come back to the pre-treatment / infection levels now (I treated acutely).
This friday 7/17 will be my last pick up cause I'm in my 44th week and from what they say, I'm doing OK.I would like to think possitive but after you have had it as long as I do, I cant believe that it wont come back.I'm still going to get low platelets after med is finished but no one knows if it will get better.So far no viral load since my 24 week but I still have these other problems, platelets, portal hypertension, and of course the sclerosis it self. Didn't know much about how bad it was but now I do, cause it was explained thats the reason I got Lynchen planis. That will disappear if the virus dont come back, but in my mind I will be looking at the worse. Thanks for any help in the past and hope to be around for a while.
You are so right about treatment not having sense or organization about it. That part is maddening. I could tell you that your hgb would start to drop after 3 weeks, but I doubt even that would be true for everyone. It'd be great if there were a chart that said expect this now and this at 28 wks., but the personal immune response is totally unpredictable. I never really had the fevers, either.
The extended follow-up is typical of a trial and yours doesn't sound any longer than normal follow-up. Wonderful that you responded to the platelet drug. Most of us could have used that, since we seem to dance around between 30,000 (not safe) and 100,000 (low).
The extended follow-up is typical of a trial and yours doesn't sound any longer than normal follow-up. Wonderful that you responded to the platelet drug. Most of us could have used that, since we seem to dance around between 30,000 (not safe) and 100,000 (low).
Does all of us get the fever through the end?
I never even had the fever in the beginning but it came on about week 30. Nothing about this treatment makes any sense or has any organization to it, you just can't tell what will happen person to person.
You will get better through. I was skeletal during treatment but am not any longer. In fact I wish I could lose a few pounds now! Hard to believe those days ever came but things will get back to normal again and you will finally be free of this disease.
Wishing you SVR.
I never even had the fever in the beginning but it came on about week 30. Nothing about this treatment makes any sense or has any organization to it, you just can't tell what will happen person to person.
You will get better through. I was skeletal during treatment but am not any longer. In fact I wish I could lose a few pounds now! Hard to believe those days ever came but things will get back to normal again and you will finally be free of this disease.
Wishing you SVR.
The only question I ca comment on is yes, I too get the fever often. Had it every night for a month ( 101 -102 ), then it went away for about a week. Now I get one 3 or 4 nights a week after my shot. Tylenol does help sometimes. Nurse told me some people run a fever the entire time they are on tx. Its the interferon causing the fever.
I have read that having the fever is bad for the virus because it can't survive with the high body heat. Don't know how true that is but thought it was interesting.
I have read that having the fever is bad for the virus because it can't survive with the high body heat. Don't know how true that is but thought it was interesting.
I'm coping with the going crazy issue, Every little thing bothers me and I dont even know how my family puts up with it.I try to control it but its bigger then all of us.I try not to take anything other then my med. so when I here of others I shy away.As it is I'm taking 2 pills a day for my cough (sertex) if its spelled right. 1 pill for my platelets, 1200 mg a day of riba, and Of course 1 shot a week 0.5 500 strength.hope that helps.
It'll come back. And, yeah, I had a fever up until the last day. Your body doesn't necessarily acclimate to the interferon over time. I think in many cases, the body gets more drained toward the end.
One thing you don't mention are any psychological issues. My own were mild, but nonetheless led to a constant feeling of hopelessness. I would really need to fight against this. I'd need to remind myself that my gloomy feelings were not the real me, but that was hard to do. Your emotions are your identity. The interferon screws with your head as well as your body.
Once the treatment is over, you'll feel more positive and have an easier time with lots of these issues. Good luck.
One thing you don't mention are any psychological issues. My own were mild, but nonetheless led to a constant feeling of hopelessness. I would really need to fight against this. I'd need to remind myself that my gloomy feelings were not the real me, but that was hard to do. Your emotions are your identity. The interferon screws with your head as well as your body.
Once the treatment is over, you'll feel more positive and have an easier time with lots of these issues. Good luck.
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