no SVR for me

[bjack59]

I am 3 months post treatment, I found out Monday (last monday) that the virus is back.  the doctor told me it was a scarce amount and we would wait a couple of weeks to see if my own immunity could fight it. If not,  my two options were to treat now with a combo or wait for new drugs.  I already have cirrohsis so the new drugs might not come out in time.  I told him I would not treat again at this time. the last few months were a nightmare ( i was literally in bed for 4 months) I have started feeling better physically, although i am still struggling with brain fog (more like brain dead to me.)  my doctor has put me on some antidepressents ( I am already taking some, but he told me to take both kinds) I really don't have a question, but advice i can always use.  I h ave been trying to get on this site since last Monday,  I tried every day and med help finally emailed me today with a new password and I still could not get in.  has that happened to anyone else?  Someone told me to go to recovery in the control panel and do something there and then i got it.  

[Idyllic]

Wow I am so sorry to hear this. I can imagine what a huge let down it must be. Like Hector I am a bit confused about the stage of fibrosis you are. Sorry in advance if this sounds nosy it's just if I thread the facts in your prior posts together accurately than I believe it is possible you may have been misinformed - or are perhaps misinterpreting your diagnosis.

In your 02 July post you mention that you were cirrohsis stage 2 when you started treatment. I was wondering if you happen to still have your physical copy of your biopsy. The text portion usually reveals the condition of your liver (well, a cross section) in addition to the stage of fibrisos you are.

I hate to offer hope if your situation is different than what it is but if you are (well, were) treatment naive and Stage 2 Fibrosis rather than cirrhotic then you might have all kinds of time on you side. Plus you are young.

Anyway, I could be wrong about all this but something seems off about your diagnosis. Either way I know treating can be a real strain and even though you have been off the meds for some time I hope you continue to heal and get your life back on track. I am sure you hear this all the time but it is true: there are many different (less harsh) HCV meds that will be out within the next few years so hang in there!!!!

[can-do-man]

Sorry to hear this but I'm holding on hope with what your doctor said as if the amount is detectable but below the range of the test then all might not be lost.......... Just hang in there, wishing you the best

[cindyh113]

So sorry to hear this. I know what its like not to SVR. Did the riba/inter. in 08-09 48 weeks. Relapsed in the 3mo. after. Now, doing the triple threat, on week 11. Praying for SVR this time and will be praying for you also. I know one other person who became UND and then DET. But now they are SVR! Praying it was a fluke! Hang in there!

[HectorSF]

Hi.

I am sorry to hear about your recent relapse.

....I just saw your latest post after writing my response. Now I have to revise it as your last post contradicts everything I had assumed previously.

Okay, you are genotype 1.
You say you were on "on triple with Incivek for 6 months".
If this is true, you can't retreat with either Incivek or Victrelis or any PI and treating with only peg-INF and ribavirin would be pointless.
So you treated for 24 weeks because you never treated before and didn't have cirrhosis correct?

Last year at this time I was F/2-F/3, so I guess it just turned to cirr after August.
You can NOT go from stage F/2-F/3 to F/4 in one year. So either one or the other stage was incorrect.
If you were cirrhotic in August, why didn't you treat for 48 weeks as all patients with cirrhosis should?
Who says you have cirrhosis? Your GI? Based on what?
What does your most recent biopsy say?
When was it done?
What was your platelet count before you started treatment?
What were your ALT and AST counts?

If you don't have cirrhosis then you can wait for new interferon free treatments to be available. If you do have cirrhosis then your only option for treatment would be to wait for a clinical trial that excepts cirrhotics. Or wait a few years for your viral resistance to clear from your previous treatment and then do 48 weeks as all cirrhotics should.

In order to assess the status of  your liver disease we need real data. Numbers, quotes from reports such as you biopsy, scans etc. You can get copies from your doctor. I am sorry but the information you have provided is contradictory so it is impossible to determine the true status of your liver disease and what you should do after recovering from your previous treatment. If you can provide some real data then we can tell you something more than generalities.

Good luck.
Hector

[bjack59]

thanks for the concern - i am type 1, am seeing a hep - he is sending for another blood test on aug. 15th. He wants to see if my own immunity is trying to fight it - i have never heard of that.  i was on triple with Incevik for 6 months. He will moniter me to see if i can wait for the new drugs. Last year at this time I was F/2-F/3, so I guess it just turned to cirr after August.  Maybe after the severe depression goes away, I will find the strength to fight again.  I know many of you have have treated 2 or three times.  That is truly amazing.  Did you really have it bad with the symptons or did it get better the second time around?

[crossroadsec]

This is tough news. Makin me cry. the thought of starting 48 weeks again sounds exhausting. If your dr (a liver transplant specialist I hope) thinks you can take a rest and go for it.....
My dr and I had already talked about if I failed. We were gonna try it again w the new drugs. I was on triple w Incivik.
Don't give up on your dreams. Try and keep yourself mentally boosted by thinking about the future. With all the new options? You've got a lot of living to do. It's hard living w/ cirhossis.  Take it easy on yourself.
Karen :)