ready to give up HEP-C

[bellsystem]

after 49 years with c, the effects are getting to me. the joint and muscle pain keeps me from sleeping properly. the doctors here in my area of Florida are afraid to give  the heavy drugs. does anyone know what's the best pain med. I can get over the counter.  thank you,

[hepcat60]

If you in North Fla.  I would suggest you get a referral to Mayo in Jacksonville.  I started my treatment there and am followed by the Transplant Center.  They are very good.  I quit  going down there as I am 3 hours away.

[Kickit007]

I thought I would repost this for you I have just joined the forum thought it mI was on interferon treatment for 1 year.  Very rough time. Hemoglobin always low need extra injections for that.  Depression and so very tired.  At the end Virus was undetectable. I have G type 1.   1 - and half years later it is back (it may have come back sooner but too scared to take the test)  I am a musician who lives and works presently in Mexico.  My lifestyle has not been the best - though I eat and sleep well.  Lots of fresh fish, veg , fruit , walking , swimming all readily available here cheap. I have been seeing a local Dr. here in Mexico she has prescribed me a very different regime   For the present she has prescribed l-ornitina L-Aspartato and Valinir  just tablets and a soluble you drink 3 x a day for one week..  Next month when I am ready I will begin 3 months 3x a week injections of Eritiopoyctina.  The first meds have left me a little tired, I finished them today.  I have joined this forum to see if anyone is interested in following my progress.  What my treatment cost tax payers and the Canadian government (as I was lucky enough to qualify for a program) was astronomical!  The cost here in Mexico?  you can pay for it if you cut out starbucks for 3 months. If this interests anyone or anyone has questions about my 1st treatment I would like to post my responses.  My lifestyle did relapse after the treatment - As I have G type 1 the hardest to cure 43% and I was a very good girl throughout the treatment.  I blame no one.  Maybe it didn't work or my lifestyle helped the virus return.  I am not encouraging anyone to stop their present treatment.  But though this may be of interest to those who may have been through the treatment before with the same results.  PS When was the last time a Doctor hugged you?ay be of interest

[bellsystem]

my search talents are not the best. don't know why I didn't see that discussion. I thank you again. best forum ever. keep in touch.

[Shyrlgame]

http://www.medhelp.org/posts/Hepatitis-C/Who-is-your-good-doctor-/show/1715783

[bellsystem]

Ty you shy, over the years I’ve been through, 3 gastroenterologist , 2 primary
ctors, 1 hemogolist.  I cant find a hepatologist in my area. Nearest is 1 ½ hours away.  I occasionally go to clinical trails web site, to see for new hep-c treatments that are at least 75 percent success with geno-1 patients.  Yes, I do love being warm. (in Florida) a/c set at 78. Vit-d, always in the sun. (Florida “sunshine state” )  vit-c I’ve been taking at least 1000mg for 30 plus years.  One question shy, where is  (There is a thread here with a list of highly recommended Hep Docs and specialists)  located ?  Thank you very much  

[Bali05]

That`s some good advice from Shyrl.
If you ask me pretty much all OTC stuff is no good. If you are lucky it will
make you feel better for a very short time and in the meantime your liver
and kidneys will have to work hard to filter all this garbage back out of your system. I often feel it is not worth the pay off when it comes to OTC.

b

[Shyrlgame]

I'm sorry you are in Pain.  I'm thinking it would be great if you could treat your hep, but you have tried twice.  I say there is still hope.  Three could be the charm!

  What harm could it do to find a great hep doc and discuss your current options at this time as new treatments are on the horizon?  There is a thread here with a list of highly recommended Hep Docs and specialists.

As far as OTC pain meds go I cannot recommend as I feel you need a doc to prescribe in your instance.  I know that for me a heating pad or warm cloths, and warm baths, before bed have been helpful for my muscle aches.  Also Vitamin C is said to be beneficial for muscle fibers and Vitamin D as well.
Best wishes,
Shyrl

[bellsystem]

I apologize for not giving more info. feel like crap most days to even type. at 19 I was a fool and got c. I never liked the taste of alcohol so my liver has lasted. over the years ived been on treatment twice and have had 3 liver bi-ops, plus numerous ct, mri, ultrasound's. etc. etc. half of these when they were still calling it non-a non-b hepatitis. treatments were with both the 2 an3 combination's.  will probably die when that bus hits me, before liver go's into full cirrhosis.  mean while I want do be able to do everyday necessities, and go fishing for 2 hours once or twice a week. there has been big crack down on doctors around here due to druggies coming from all over, and crooked doctors. ived been up and down the isles reading pain med. bottles. tried everyone I can. where do I go from here, or do I keep paying for that mistake I make forever. thanks for any suggestion's.

[ActingBrandNew]

Have you ever considered treating the HCV? If your docs dont want to give you anything for the pain....how about the Hep?

[can-do-man]

Sense we do not know anything about your health or your liver condition it would not be wise for anyone on the internet to suggest what you should take. Won't your doctors tell you what OTC meds would be ok for you?

Wishing you the best........