Hi Billy. I have been reading your threads and so sorry to hear you are having such a rough time. You are in my prayers. Hoping the re-adjustment will help so you can get back on track. You are doing the right thing by listening to your body and seeking your dr's help. Hoping you feel better and stronger soon. Keep posting.
Oh Billy - that is too bad and I am sorry. Hopefully you can regroup and go after it again.
My best, Anne
Thanks for the update on your situation. Sorry to hear that they took you off riba, but happy to hear that you're getting the procit. Hopefully the riba can be reintroduced once your count increases. Hope you feel better soon. You are in my thoughts. Hang tough!
Good luck Billy, I hope this numbers improve !
i was curious how low your hemogoblin level is that you had to stop your riba.
i hope you feel better soon......
Sorry to hear about your situation. Be strong. Will be praying for you.
I am really sorry they have done this to you. Are you treating with a hepatologist who has lots of experience in treating Hep C? What does your HGB have to be before they tell you to continue the ribavivin.
frijole
I realy dont understand what is the hold up with the Procrit the telapravir will NOT work without it....
In my Victrelis trial they would not discontinue ribavirin (and tx completely) unless HGB was below 7.5 and 600 mgs was the lowest dose they were willing to prescribe. I spent many months with hgb in the high 7s and low 8s. jt57 spent a long time with hgb in the 7s and 8s also and had tranfusions at the end so she could complete tx. I think Cando also had his HGB get into the low 8s without dose reduction.
Billy sorry to hear that your doc stopped the ribavirin, Hopefully they will put you back on it ASAP. Did your HGB take a dive even more?
Good luck,
Dave
I was in mid 8's as well without a dose reduction or Procrit - but also was within 4 weeks of EOT
from what i can gather stopping riba is ill advised as mutations will emerge or reemerge quickly why not dose reduction was this recommended by someone other than a nurse practitioner
It's almost as if they are completely sabotaging this course of tx for some reason, none of it makes sense. I just can't see how this is going to work out well.
i was really out of it....had to lay down during the appointment...my doctors office has treated hundreds of hep c folks...this is not the first time they had to stop riba for a short time because of blood work....i think my hgb went down too fast for my body to handle..from 14.5 to 8.5 in less then 4 weeks.....i'm in bed almost all the time..i think my 4 week vl will be fine...we will see later this week...thanks...billy
I just read about good news 4 weeks und. What drug combination did you use?
That is a serious change in hgb in a short time. I hope things improve soon and your able to get back on your riba and this tx does the job.
Good luck,
Dave
Good luck Billy. I hope you feel better soon and can resume full treatment asap. I will continue to keep you in my thoughts.
Sry to hear ur down. But did you read the posts earlier on riba deduction and success rate? It was amazing! You're still in the game. Fo sho! Karen
Mine was down that low and they just reduced riba and interferon until HGB came up with the help of procrit. My understanding is the incivek will not work without the riba and interferon. Its ok to stay in bed. That is what I did for the first 8 weeks. I know exactly how you feel your not alone. Mine fell from 15.? to 8.5 or lower in 4 weeks also. I started all my reductions right into my 5th week. Believe me, There is nothing worse that I know of yet than being anemic! I dont know if there is some other medical reason they are doing such a drastic measure on you. Wishing you a quick recovery and getting back on track quick!
hi, I am on ribavarin 1000 mg and pegasy 180 mircogram.. My first time on treatment. sx managable. I hope i will continue safely to SVR. Everyone's support is important. Thanks.
well this sounds awful but i feel better knowing you were in the same place.....i feel like i/m dying a lot of the time...its so hard to get out of bed....today since i cut the riba i feel a little better...i have a months supply of procrit...i was so sick at the doctors i could't even ask for a copy of my blood work...had to lay down to get an exam...thats bad...too bad to continue tx like this...i still think things will get better soon...we will see....thanks....billy
Get some rest billy. I used to lay down and wonder if I would wake up. I said all my I Love You's to my friends n family every day. It's scary stuff man. As you fall asleep, try and think about all the things you'll do when you feel better. You got a lotta living to do.. You'll get there. Karen :)
Yow, that is a huge drop in your hgb, I am so sorry it has hit you so hard. I sure hope you can resume and all will be well. Make sure you drink a lot of water and well, good luck,,,,time will tell, just take care of yourself.
Mary
Billy mine dropped that much in ten days.........believe me there are plenty of us who had the same reaction but you gotta get back on that riba man or you are never going to see SVR. Did they even bother doing a 4 week PCR to see if you are UND? If you are not I would not be surprised to see your VL go back up - it's that serious that you take the riba.
you must be pretty tough deb...they did a 4 week pcr ..i'll hear about that on friday...i feel better today and hope that with the procrit i will be back on riba very soon...thanks a lot....i'll keep an update....billy