Aa
dehydration or anemia?
Whoa...I was doing AM dishes and started feeling really weak with heart pounding..and had to sit down...heart is still pounding several mins later..I think I'm drinking enough water and I didn't break out into a sweat or have thirst...But I'm not cold either...Is anemia from tx different than regular anemia? I'm getting #2 bloods done tomorrow...(I'm just finishing week #2...) Anybody experience this?
Hemoglobin can really drop of steeply. Like nygirl, I had a very steep drop early on and wound up in hospital, just within the upperlimit of the transfusion range. I think we who have been active before tx may notice the oncoming weakness more and sooner. Its shocking I know, I was out of breath from raising my arms in the shower to shampoo my hair when I first noticed how weak I felt.
Don't drive while you feel this way. If you need to go to ER, call 911, you're a hazard on the road. Also, you're vsion can suddenly go out from insufficient oxygen to the brain VERY SCARY.
I've been struggling with hgb since week 5, have been on and off procrit throughout tx and finally (2 weeks ago) my doctors put me on procrit "for the duration" Better that than reduce the Riba dose, you want to take as much Riba as you can tolerate, esp. early on in tx. Get your cbc and ask about procrit, it takes a while to work and can take a few tries to get to the proper dose for you.
Good luck - please advise how it turns out.
jd
Don't drive while you feel this way. If you need to go to ER, call 911, you're a hazard on the road. Also, you're vsion can suddenly go out from insufficient oxygen to the brain VERY SCARY.
I've been struggling with hgb since week 5, have been on and off procrit throughout tx and finally (2 weeks ago) my doctors put me on procrit "for the duration" Better that than reduce the Riba dose, you want to take as much Riba as you can tolerate, esp. early on in tx. Get your cbc and ask about procrit, it takes a while to work and can take a few tries to get to the proper dose for you.
Good luck - please advise how it turns out.
jd
medic, best of luck, I have a constant battle with HGB, Debby is right.
The worse feeling, and harder when your active normally, learning to adjust for me is also a constant battle! That is why I post way to much!
Take care and do let us know!
Deb
The worse feeling, and harder when your active normally, learning to adjust for me is also a constant battle! That is why I post way to much!
Take care and do let us know!
Deb
Waiting for labs...Ty so much for the support...I'm sitting here asking myself, "Am I just whimping out? Maybe I'm making a bigger deal out of this than needs be...Maybe I'm out of breath because of lack of really good activity for the last 2 weeks...and I'm turning into a computer chair potato..." It seems weird that one moment I'll be just doing normal stuff (vacuuming, etc) and then the next, boom!, out of breath and rubber legs...Grrr...I got stuff to do! LOL Well, if it is the low HGB, at least it's treatable..More than anything, I'm afraid my doc will freak and pull me off tx...I know I'll clear if I make it through...The brain fog is already better! -And mystery aches are gone...:)Ty all..I'll post later when I know...
If you've only been on TX for 2 weeks it's highly unlikely that HgB would have dropped to between 7-9, which is transfusion range
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Unfortunately for me that isn't exactly true - I dropped six full points between week 2 and 3. My doctor didn't catch it because it was so drastic so early - but I insisted and he gave me the C BC and there it was from 15+ to 9 in that amounf of time (yes I was taking a LOT of riba - way too much I admit)
But it can happen.
And wyntre is right that's exactly what it feels like...heart pounding, feel like blacking out (I kept fainting), hands shaking ----
Please be CAREFUL on the stairs (HOLD THE RAILING) and driving (GO SLOWER THAN USUAL so you have more reaction time) - this is a serious problem. I would call today right now and get those results..........if it is the HGB you're going to have to start on Procrit ASAP cause it taakes from 2 - 6 weeks to work and many times it has to be adjusted up then down then sideways and all around to get it just right!
GOOD LUCK!~
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Unfortunately for me that isn't exactly true - I dropped six full points between week 2 and 3. My doctor didn't catch it because it was so drastic so early - but I insisted and he gave me the C BC and there it was from 15+ to 9 in that amounf of time (yes I was taking a LOT of riba - way too much I admit)
But it can happen.
And wyntre is right that's exactly what it feels like...heart pounding, feel like blacking out (I kept fainting), hands shaking ----
Please be CAREFUL on the stairs (HOLD THE RAILING) and driving (GO SLOWER THAN USUAL so you have more reaction time) - this is a serious problem. I would call today right now and get those results..........if it is the HGB you're going to have to start on Procrit ASAP cause it taakes from 2 - 6 weeks to work and many times it has to be adjusted up then down then sideways and all around to get it just right!
GOOD LUCK!~
TY for your concern...had labs done today...And doing about the same...If this is what it feels like to be old, they can have it!LOL..I'll find out tomorrow (I think) if anything has changed...The lab tech and I have become friends...He felt bad because, for the first time ever, he had to poke me twice...Maybe I do need more water after all...:) I'll keep you all posted! Ty again for the support!
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