Leg/Butt Pain. Muscles Twitching> Herpes Related??

[bamboozled86]

I'm a 26 yr old male that has never had any health issues or problems in my entire life beside the occasional cold/flu that everyone else gets. That all changed a little over 4 months ago.

Had brief unprotected oral sex from a girl i met the day before and about 40 secs of brief unprotected intercourse. The rest was protected sex. 6 days later while driving, I began experiencing short sharp random stinging pains in my groin mostly above the right testicle area but the pain didn't feel like it was from the testicles.More like deeper in the groin. Also, my perineum area felt swollen like I was sitting on something near my rectum. 1 day later i got a sore throat and my neck lymph nodes felt slightly swollen. 2 days after that, I noticed a raised bump on my penis shaft on the bottom right side. It looked like it maybe an ingrown hair cause it didn't hurt and it never turned to a blister but I have never seen a bump on my penis like that before. Also, when i would shower, I would feel a sting in one area on the rim of my penis head when the water from the shower head touched it but there was never any sign of redness, bumps, cuts, or abrasion whenever i checked it.This weird pain lasted in the penis head rim for almost 2wks. Went to get tested for all STDs/HIV and all tests came back Negative. I know 1 week is too soon for HSV and HIV test but both were negative so I had no previous exposure. Urine sample, clean. Girl also said she was clean on everything but i'm not convinced she had herpes testings. Doctor did turn and cough test on me and said I might have a hernia. Doctor looked at bump and thought, ingrown hair or irritation. Prescribed 10 days of Doxy as a precaution if I had any bacterial infections. The bump went away in about 3-1/2 days. Had a surgeon rule out hernia and thought pain was due to some type of strain.
Then got sick with cold-like symptoms that lasted almost 2 weeks. Very rare for me. Was treated for sinus infection. During this time, i developed the random burning pain up and down both legs and buttocks, sometimes in arms and back. Then the muscle twitchings started. mainly in legs when i would sit and relax. Every couple days or so I would notice very tiny tiny white head like pimples on my penis shaft that would last for like maybe a few hrs or so maybe 1 day tops. Never more than one at a time. They looked just like pimples you get on your arms or face but then again, I've never seen this on my penis before. Ever.
Got blood tested again for HSV and HIV at 6 wks. Tests came back Negative again. Showed doctor one of the tiny whitehead pimples and he said it wasn't herpes.
The random pain in my body, mainly in the legs, groin, penis, and buttocks have been on and off ever since. I seem to get a pain in my penis minutes after i urinate every now and then but never while urinating. Urologist said I may have prostatitis but all my urine samples have been clean for bacterial infections. The swelling in my perineum was gone by then but I still feel the random groin pains.

Still convinced that I had something wrong with me, I went and got tested again at 12wks. HSV 1 and 2 were again Negative. All herpes tests have been Herpes Select Type specific IgG. I began to believe that i didn't get herpes but then the pains would come back and change all of that. I then got another bump like the one i described in the very beginning near the base of the penis by the pubic hair region which again didn't hurt. Doctor saw it and said she was certain it wasn't herpes and was probably folliculitis/ clogged hair follicle. Bump completely went away in about 5 days.

It has now been almost 5 months past expose and i still don't feel normal. Some days i would have a day or two of little to no symptoms but then it would all come right back. I don't know what to think. This issue has been driving me crazy. If its not herpes, then what is it? The bumps i got don't point to herpes but all the nerve pain and constant non-stop muscle twitching mainly in my legs seems to say that it may be nerve damage from herpes. I have done tons of searching on the web and I have seen ppl saying they got leg twitchings from herpes but all the experts don't seem to think its related. I take all sorts of vitamins so, i can't have any deficiencies. And i had an xray of my back to rule out spinal abnormalities. My next step will be an MRI of the spine but I'm almost certain it will show up normal.

I try to live a normal as possible life so i won't get stressed over this but the symptoms won't let me move forward. Anybody experienced these issues but never tested positive for herpes or any type of virus? Sorry for the long post but i wanted to give everyone specifics of what I'm going through. I actually left out way more information but that's just how complicated these past 4-1/2 months have been for me. Any help is appreciated.

[Rocketsrock]

   I recently read your post...as soon as you see a breakout, you must be tested for Herpes...the virus can only be tested for 2 days.....My Husband contracted Herpes after 14 years of being together. Unfortunately, he gave it to me. I have terrible leg spasms and breakouts. Herpes infects your entire body.... Good luck

[gracefromHHP]

really sweet of you to come and try to get someone doubting their negative testing after minimal risk and  possibly get them anxious again.  

phn from herpes simplex doesn't often occur. what few studies we have on it shows that it's relieved with daily suppressive therapy. It's not something that we try to encourage folks that they have needlessly here on the forum.  There is no reason for this poster to seek out a herpes WB - their testing was negative multiple times , their symptoms aren't consistent with herpes and they've tested + for lyme disease which is known to cause these symptoms more often than herpes does.  yes indeed there are exceptions to the rule but thankfully those exceptions are few and there's no reason to panic people needlessly - it's not what this forum is for!!

grace

[comfortoall]

It very well may be Herpes. It may very well be something else. I am in the medical field, and I can tell you that there are circumstances, although rare, where Herpes I or II, especially Herpes II Genital, exhibits pain and stabbing just as you experience, especially in males. It seems that muscular and athletic men sometimes complain of extreme buttocks, hamstring, groin, calf, and foot pain after contracting genital Herpes. I had a patient whom was 48 years old and had never had Chickenpox as a child, He had brief unprotected sex with a known Herpes II female. His initial "outbreak" was very small, Only one blister and some rash. Then the virus went into the nervous system where he experience severe pain in his back, buttocks, legs and feet. This continued for over two years before subsiding. He has had it now for five years and still complains of shooting pains in his legs, groin, and numb toes, thought to be from nerve damage by the virus. A virus is not a living organism, but contrarily tries to "re-program" your cells to their structure. The body reacts by producing specific protein compounds to render it inert. The body can not completely rid itself of the invading virus. Every virus you have ever had is still within you. It is simply kept in check by the body. The Herpes virus never goes away, but takes refuge in the nerve axiom where the body can't get to it. Sometimes this can cause severe pain and suffering, sometimes the suffering is for life. The chances of severe reactions from Herpes is rare, but it does happen. Every immune system is different. Some can't quite develop the antibodies to fight the virus so the illness lingers more than it does in others. Some people find that herpes is no big deal, as their bodies fight it very well. Some even don't know they have the virus, since they have never had a breakout.
My best advice? See a doctor, and discuss all possibilities with them. The symptoms you describe are very rare for Herpes but they do exist. If it is Herpes, a course of antiviral should alleviate the symptoms. There are more exacting blood test that do find Herpes antibodies that standard testing does not. Find a specialist and eliminate the guesswork.

Good luck

[bamboozled86]

I very much have considered yeast/candida. It was one of my concerns from the very beginning, but all the doctors always dismiss it as an issue. I asked my urologist this very question during my last visit and he said it would have showed up in my numerous urinalyses. I don't know how accurate that statement is however.

[Bhealthe]

Have you considered yeast/candida? Doctors tend to go immediately to antibiotics and treating bacteria. It is possible for men to develop yeast issues (think jock itch). You also took 10 days of antibiotic which kills bacteria but can open you up to overgrowth of yeast. Many docs do not look at fungal/yeast infections but they can cause many awful symptoms that seem unrelated.

[bamboozled86]

I am still waiting to have my appointment with my infectious disease specialist . Hopefully, I will be seen sometime next week. But my nerve issues still persist to this day, albeit it is not as bad as it was in the initial months. I am on Lyrica for the nerve pain and that seems to help and my neurologist suggest that i continue using it for a few more months to see if it continues to improve. I will continue to update my saga when more info becomes available.