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Avatar universal

Long time HSV2

I've had HSV2 for about 3 years now. After the first year and a half I went off Valtrex since I had no recurrence symptoms for over a year. Now I have odd symptoms at rare times but nothing like the original outbreaks were. No flu like symptoms, only occasional redness or a rash like area on skin, mostly not on my genitals but in other places like my hands, feet,etc.. I wonder if it is transmissible even though my husband and I no longer have sex? He is constantly worried about it and makes me feel dirty that I have this disease. I don't believe it is possible to transmit it without symptoms or contact, honestly. But many people, I have found, feel this way about herpes when they don't have it and make others feel like they are horrible dirty people for no good reason other than their own fears.
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101028 tn?1419603004
have you ever read the free herpes handbook at www.westoverheights.com? It's a free and accurate source of information on  herpes. Terri Warren, our medhelp herpes expert, has been keeping it updated for I think 20 years now and it's really helpful for information and to refer others to.

Sorry you were raped :(   did you also cover all your other std testing bases too from that?  do you think your husband has issues with that and that's why he's using herpes as a reason to treat you poorly and wants a divorce? Did you two ever deal with that together thoroughly?
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Avatar universal
Oh no, the email you sent mentioned nothing about that website being poor or inaccurate. I think the people on the forums are a touch weird so I don't go there anymore, but most of the info there is OK, but indeed not a perfect place, though fine for starters.
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Avatar universal
One thing I neglected to mention is that I was raped 3 years ago. Big difference there. =/
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101028 tn?1419603004
well if you have only slept with him ever, then it came from him.  it isn't something you got from anything other than sex.  If he really is getting properly tested and doesn't have it, that's why you confirming the way you were diagnosed is helpful. perhaps you have hsv1 genitally and not hsv2 or perhaps it's not herpes at all. There really are reasons why I ask the questions I do. I am not just being intrusive and nosy.

also the other website you keep recommending isn't on our list of recommended sites because it's a poor site in general and has been for years. It's a site many of us here are well familiar with which is why it's not on our approved site list.  We don't recommend folks seek out help on sites that have a history of inaccurate information and/or gloom/doom postings about genital herpes.  I think that was explained in the email you received about it but wanted to make sure.  
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Avatar universal
Grace dear, I did not have herpes when we got married. I was diagnosed, if you would read correctly what I am posting, only 3 years ago. Highly unlikely that I had it before then as I never had symptoms of any STD in my life till 3 years prior to 2010. PERIOD. I was never sexually active till after marriage. Now You are making huge assumptions of my diagnosis which you are not knowledgeable of.

My husband on the other hand tells me his pdoc is testing him yearly, sending him to a urologist for herpes testing. He doesn't tell me what test he gets. I believe him, since he never lies about his health.

Thank you for your concern and suggestions. Counseling is not an option for me at this time. I have no money for it. There is noone to be found freely in my community. I live in a small rural  town out of reach of free services.
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101028 tn?1419603004
well then he is just being totally silly because if you are hsv2 + and he isn't, then you've had hsv2 since before you even met. he's been with you this long and knows already how unlikely in general he is to contract it from you ( assuming he is properly getting tested for herpes and really is negative ).  

You can't control his reactions to things but you can take care of yourself. Getting a divorce is never easy.   If he won't go to counseling with you to work through your issues, go to counseling for yourself to help you get through this.  

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Avatar universal
Wow, we were together for since 1978, and I was diagnosed only 3 years ago. You do the math.
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101028 tn?1419603004
how long were you two together before you were diagnosed as having genital herpes?

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Avatar universal
The only low or no cost options open to me are in the city and I live in a rural area. I can't get anywhere even if it were free! I don't own a car. I have driven my husbands vehicles all my life. I was married at the age of 20 and now it seems I am being forced to start over at a bad time in my life when I have few options, little help, no income and social issues also. I am sorry you think I am making assumptions! I am Not assuming everything on my body is herpes, it is just that my husband is making me crazy with His assumption's! He says things that make me think there is something wrong with me all the time. He is suffering himself with heart issues and could drop dead anytime, since he can't have surgery. He has no will to live, says I am dragging him down yet he is doing the same to me. Herpes is a minor irritation but with the current situation is is looming larger than necessary all around.

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101028 tn?1419603004


You seem to assume that everything on your body is due to herpes. Odds are it isn't. Certainly genital herpes can occur anywhere in the boxer short area. oral herpes can occur in the nose area too. your hands and feet issues aren't likely at all to be due to herpes . if it's not herpes, antivirals won't help. If it's not herpes going on, you don't have to worry about transmission to others.  Finding out what is going on gives you the ability to treat it so it's less bothersome for you.  

If you don't have insurance, call your local health department to see what your local no cost and low cost options are. they are helpful in helping you find places to follow up on things at.

Are you on suppressive therapy? If not and you would like to be but can't afford to  be, check out the gsk bridges to access program.  You might qualify for free valtrex for suppressive therapy to help you have less recurrences.  

Are you talking to anyone face to face to help you with the stress you are going through right now?  A divorce plus health problems along with family issues can really do a number on you.  All the support you can get is helpful and there are low cost/no cost resources out there to help you get through this.

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Avatar universal
Pay to post? What is that about?? I am unemployed right now so I won't be paying for any advice if I can get it free..

Convinced of what?? I don't know where you are coming from dear. You seem to think you know something I don't. LOL I was tested and had every symptom in the book of HSV2 and it was confirmed by testing. Why should you question that if I am not asking for that kind of advice. All I really need is emotional support. Not tests.

I have allergies so some of my symptoms are likely due to this. Besides, I can't pay for any new tests if I an unemployed, hence, why I come to sites like this!

I think i will go back to that free forum I am member of and see what they say. They don't have any experts, and I highly doubt there are any unless they have the disease themselves. Sorry if this sounds cross but I am fed up with experts. What good is it if you can't pay for their advice?!
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101028 tn?1419603004
you've convinced yourself it's all herpes when odds are it isn't. It's really worth a thorough work up.  

I encourage you to pay to post to Terri Warren on medhelp, she's our herpes expert.

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Avatar universal
Does this matter after so much time? I really don't think I need to answer that question. It won't help anything now.
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Avatar universal
Oh, and I really don't recall what test I had. sorry
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101028 tn?1419603004
what sort of work up have you had for all your symptoms?
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Avatar universal
I am very aware of how and when this disease is spread and there is no possibility of counseling for my husband and me since we are going to get a divorce, his choice, not mine. He won't consider anything! He does not have herpes and has been tested yearly since I was diagnosed.
You would be surprised and how far this disease has spread on me. I had lesions on my face, hands etc.. many times. But have been totally symptom free now for about 2 years. Last time I had an outbreak was xmas of 2007 under my nose. Don't know how it got there so don't ask, I didn't have symptoms below the belt at the time or if I did I did not notice till it was too late. My symptoms have been very mild since the original outbreak.( which was extremely severe, actually) Hard to track when you don't or can't see anything nor feel any tingling, itching, blisters, etc.. and having low vision makes it hard for me to notice anything on my body anyway. I can't see without my trifocals on!!! I see nothing but blur.
I know what your saying is true but cannot convince other people that direct contact is the only way to get this disease. I am being ostracized by my own family, even my mom, from using the same toilet, bathroom, laundry done separately etc.. I am afraid to even hug or shake hands with people. I don't know what reaction I'd get if they knew! I have had severe reactions and wish to avoid this in future. Thank  you for your kind advice but it won't help me now.
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101028 tn?1419603004
flu like symptoms only occur typically with a newly acquired infection. You shouldn't expect them to be occurring with recurrences.  

redness and rashes on your hands and feet aren't likely to be due to herpes at all. follow up on that to see what is going on. it could be many things including dyshidrotic eczema.

if you aren't having sex with your husband than he's not at risk for your herpes. was he ever tested to know his own status when you were first diagnosed?    

What testing did you have when you were diagnosed originally?

you can transmit your herpes even when you don't have obvious symptoms but you'd have to be having sexual contact to do so.  

have you considered a therapist to help you and your husband work through this together?

grace
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