22 yr old male Lymes?

[hv2laf]

Hello all,
Im going to make this a very short version and include links to other posts ive made if you wish to further your reading.

I am a 22 yr old caucasian male in the military. I have had quite alot of testing done lately for worsening symptoms and arrival of new symptoms. None of the symptoms seem to be consistent with anything I eat, drink, use on my skin, breath, how stressed, or how much sleep i get.
Here is a short symptoms list:
Hypersensitivity of skin
neck ache/pains
neck pops/cracks
upper back pain (feels like inflammation all the time sometimes worsens more than others)
lower back pain left side (low as in sacral area)
pain in left hip joint
"plantar fascitis" in right foot
temporary loss of sensation to pain (outsides of arms and legs)
permanent decrease in sensation in left foot in small area
Inflammation in white area of eyes (pic in profile)
eye redness all the time / watery eyes
constipation and diarreha (stool past few weeks: dark, tarry, thick but soft consistency, very foul smell)
randomized muscle spasms
Orthostatic Intolerance (hypertension throughout the day sitting and standing, hypotension when laying down and when sleeping)
"Erectile Dysfunction" or so they call it

Im going to stop there

testing my doc has done has mostly ranged around the basics.. mostly has tried seeing if i have an STD and HIV, checking glucose levels,  checking for heart attacks lately because of "episodes" ive been having. Stress tests, 24 heart monitors, EKGs, injections in the back to numb pain nothing has worked. I asked him about testing for Lymes he did the ELISA test when alot of these problems started happening but it came up NEGATIVE.
the episodes started happening more and more frequently each week.

So I went ahead and made an appointment with a Lymes specialist.
Before testing after explaining all this. He says
"I believe I know whats happening here. You may have Lymes but with that have 2 possible co-infections causing a few of the other pains. 1 is called Bartonella the other is called Babesia. First I want to get 2 labs done first. (labs in album)
IGeneX Western Blot IgM, I hit 3 of 5 of the DOUBLE STARRED bands with IND (23-25, 39, 41) . So it still came out NEGATIVE.
                         the IgG, I hit very POSITIVE on 31, IND on 34, and POSTIVE on 41. So came out POSITIVE for IGeneX criteria but NEGATIVE for CDC criteria.
With this test he ordered  a bartonella microscopy test. Which came back showing "Few coccobacilli adherent to erythrocytes" which says "suggestive of hemobartonella or hemoplasma".

My primary care doctor is arguing these labs, saying he still doesnt think its it, started talking about the labs references and how they dont mean anything.

I just had a cd57 test done today so Ill be waiting on those results as well.

anyone have any input or better test suggestions to have this ruled out?

The Lymes specialist also ordered Babesia test and  put me on antibiotics and wants to run an IgeneX Western Blot IgM test again.

links to other posts for more reading

http://www.medhelp.org/posts/Brain-Pituitary-Tumors/small-2mm-hyperintense/show/921546?personal_page_id=513007&post_id=post_4728586

http://www.medhelp.org/posts/Gastroenterology/Stool-problems/show/1016766?personal_page_id=513007&post_id=post_4737616

im open for suggestions! thank you

[Hope75]

My extremities stay cold when I am having a flare up of symptoms.  The irony is that they feel like they are on fire, whilst being freezing cold at the same time.  Not a good feeling.  Then, when I put my feet under the electric blanket to warm them up, they feel okay until they actually heat up and then I wake up in agonizing burning pain.

The discoloration sounds a bit like Raynaud's Phenomenon, as you've probably read if you googled your symptoms.  It's interesting, not sure if it's Raynauds, but fits.  I do have redness when my feet are burning and I'm out in the heat.  I also get "hot flashes" like a menopausal woman (I'm 33, so no menopause) and my cheeks flush and I feel terribly hot.  

Safe to say you are not alone. :o)

[hv2laf]

So we are getting into the winter months, its getting colder obviously.

Since it started getting colder I did notice that while outside my hands will turn a light bluish color but not only that I get these "highlighted" looking spots on my hands. They appear orange in color or more of a high area of skin usually rounded in shape. Once I get inside though It seems to go away.
My hands and feet still will get cold while inside, even at times when my core (chest abdomen) feel like they are on fire from all the heat flushing I get.

[hv2laf]

Lyme PCR came back NOT DETECTED

wasnt unexpected

will have to try for another Western Blot to see if it comes out more positive

[hv2laf]

Ive been doing much better on antibiotics than any other medication they have tried on me.
After starting antibiotics even my daily high blood pressure dropped to where its suppose to be or used to be i should say

[gorbybelle]

Sorry I can't help you with your lab. results - I was just wondering how you have been doing on the antibiotics?

[hv2laf]

I had an ELISA test done for Lyme bacteria done back in April 09 It came back negative.

I had a Lyme Western Blot done by Igenex in mid JULY 09 that came back the following:
IgM:
   **22-25kDa ... IND
   **39    kDa ... IND
   **41   kDa .... IND
IgG:
**31kDa .... +++
**34kDa ... IND
**41kDa ... +

Had a Bartonella blood stain done by Fry Labs in JULY 09, notes were as follows.
NOTES: Few coccobacilli adherent to erythrocytes - indicated by yellow arrow(s). This is suggestive of Hemobartonella(1) or Hemoplasma(2)

Had a HNK1 lab done by LabCorp in AUGUST 09
% CD8/CD57+ Lymphs .... 6
Abs. CD8-CD57+ Lymphs... 168

The problem is my Lyme specialist believes it is Lyme, the rest of my doctors and specialists dont know, wont say anything in regards to Lyme, or just dont care to test to see.
Can anyone read these tests and give me an opinion based on their experience so I can decide how I want to continue. I dont know If maybe Im just cross reacting with other possible bacteria or maybe even a virus since my Lymphs are swollen. I have MANY labs uploaded into my album. I have so many symptoms and my thyroid TSH levels and cortisol levels keep fluctuating from low to normal.

I got my primary care doctor to order another Lyme test. I asked for another western blot in hopes to see if id come out more positive because Ive been on antibiotics since JULY. When I got my blood drawn though the lab technician told me he was pretty sure the doctor ordered a Lyme PCR.
My question is how likely would I have a shot to have that lab show positive for Lyme while on antibiotics?
Im guess whether the bacteria is dead or not it still would show, IF its in my blood they drew?
Im just trying to figure out what to do. I have doctors and CDC saying they dont think its Lyme but the Lyme specialist is the ONLY official and confident diagnosis Ive had.

Im open for any interpretations. ive had quite a workup  so ask away or enlighten me some more on the subject