Hi Steve,
It sounds like you need to get into treatment. As patsy 10 suggested post under Seeking a Doctor on lymenetdot org...but
there is a great lyme doc in CT, you aren't too far away? I travel over 3 hrs to see this absolutely greata doc....it might be worth your while. I won't ever post a doctors name even on board that does, so I can only say it's Dr P in CT.
Best to you and hopefully you can make the trip to CT.
Steve, try contacting these Lyme support groups in MA:
http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/
Did you post under "seeking a doctor" at lymenet dot org?