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Avatar universal

It is finally confirmed...I have Lyme.

After 8 years of thinking I was crazy...telling Drs something was wrong...trying to get my family and husband to believe me...I have my diagnosis.

I tested positive 3 out of 4 bands on a Quest WB. My GP ran the test, after I insisted. He was skeptical but pacified me by running the test.

I am sooo relieved to have an answer. I cried for the first time yesterday...I was so happy to know that I am not crazy. I am scared about the future and what it holds but at least I know that I will eventually get better.

I made an appt with a LLMD that was referred to me by a co-worker. His daughter had chronic lyme and this dr saved her life. I see him on June 4th. It's a little over an hour away but well worth the drive.

I have been in crippling pain for weeks now and my joints are getting worse and worse everyday. I don't know if my GP is going to give me antibiotics before my appt with the LLMD or not. Should I start taking anything now? Especially because I am hurting so badly? I know the LLMD will likely do more tests for co-infections. I am pretty sure I have bart too but not sure.

Just wanted to say HELLO and introduce myself...I will be here much more often. I am 30 years old, a computer teacher for 8th and 9th grade, married with 2 children (8 and 1).

Thank you!!!!
5 Responses
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666921 tn?1254990618
Good news [ in a 'crazy' sort of way! ] - I hope you can start getting some relief soon - the LLMD sounds like a good one - I think I would wait for LLMD's opinion/treatment - as it's not that long to your appointment.

Best wishes

gorbs x

  




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Avatar universal
Welcome!!! I am glad you finally received a diagnosis.  I am also in bad joint pain, know where you are coming from.  I was sick for a couple of months, kept going to the Dr. finally a friend of mine told me to ask the Dr to run the test for Lyme, BB came back positive along with three reactive Bands.  I don't know if I should see a LLMD?  Had very bad neck pain for two months..went to therapy for that.  Now it seems like it's my joints.  Let us know what the LLMD has to say, I may need to find one here in Chgo.
Thanks and welcome!!
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Avatar universal
I was tested by Quest and the BB was positive with three reactive bands.  I am so in need of help I am also in a lot of joint pain.  I was on doxy for a month, but I don't think that did the trick.  Should I find the LLMD in my area.  I am worried if I don't do anything I am going to get worse.  It's been two years now that I was diagnosed with Lyme. I already have seen a rheumi Dr for my neck problems a few months ago, went to therapy for about two months.  This is terrible.
Your thoughts are appreciated.
Chatterbox
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237053 tn?1258828426
Congrats on finding an answer!  I bet it is a bit relieving.  I haven't been dx'd yet.  I also had the WB done by Quest and had reactive bands are 30 and 41, but Overall NEG. I am retesting with Igenex.  

What were your symptoms you battled with for the last 8 years?  Do you remember a tick bite?  

I am curious if anyone knows why some people test fine by standard labs and others not?  Does it have to do with how bad the infection is or is it just how strong of antibodies your body is producing?  Do the ones that get positive by standard labs more likely to really have lyme?

Anyways bncrump,  Let us know how everything goes.  
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Avatar universal
Welcome.  I'm very glad you finally got a diagnosis.  And WOW!! a positive test from a standard lab.  Now you can look forward to getting your life back once you get treatment.
Helpful - 0
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