Thanks as always Platelet for helpful information in this battle, I am going to check the link ..
I have just taken a brief look and when I am free later I am going to digest this again, I am not fluent in the jargon of Medicine like you are but enough to glean enough to be very excited that I may have some answers to at least what has happened to me.I found of particular interest..Release of Chemically modified RNA/DNA Fragments due to toxic chemicals ,heavy metals...something definatly triggered the symptoms I have today ..I may need to PM you for some help deciphering some of it once I get chance to digest it, Facinating.as you say cool..
I really do think that all of this research on CFS is not only benefiting people who have autoimmune diseases, but supporting lyme patients as well. I can't stand it when someone with an autoimmune disease says, "well I have this and your condition is nothing like mine... blah blah blah". That could be further from the truth and that is more reason as to why we need to stick together (like platelets... LOL!). All of us who have invisible illness need to support one another and quit separating ourselves from one another.
You might be interested to know that Kenny De Meirleir, MD, PhD is the co-founder of Red Labs USA. (although I think they recently changed their name). His national lab apparently can diagnose both fibromyalgia and CFS (spinal fluid). But I hear that there is also a blood test that will be available within a year. Of couse the CDC didn't create this test, it was created by both Red Labs USA and the Whittemore Peterson Institute. (to my understanding).
Have a great weekend,
That will be useful.. ugh spinal tap... but okay if a blood test becomes available, I sometimes feel I am running around like a chicken trying to find out if its this then trying that and getting no where ..actually thats not true I have had a lot of information and really I know the way to go, which ever I have got. It sounds like it'll be a years course of anti biotics. What it does help me with is knowledge ....it is less scary to realise it is something and you are not a Hypochondriac or going nuts.,what has helped me this past year is seeing that there are many of us all with the same symptoms, it really makes you feel one heck of a lot better..like joining a club of Happy sick people.
I'd like the blood test when it is available. I had enough spinal taps......
Thanks for posting this PlateletGal.