@Indigo----- When I was giving you some references to contact I missed this one:
http://****.****/****/IndianaLyme/
It's not very active now---- that's often what happens to on line groups but there is some activity this month. Perhaps you might get a name there---- but my disclaimer as always (and I haven't read that group) there could be some 'strange' people there. :)
There's another woman here looking for a doctor in IN--- it was a few months ago but maybe you could send her a private email asking for information?
http://www.medhelp.org/posts/Lyme-Disease/Need-a-LLD-in-Indiana--or-even-Ohio/show/1884754
In case this is any help,. the lady who checked my eyes actually had operating rooms in her clinic where she operates on people's eyes, that was the level of qualifications she had. (laser eye surgery for vision correction, removal of cataracts etc, the whole works).
I think that is the level of person you need to see.
I am so sorry you had this dreadful experience.
I had a similarly upsetting (actualy more so because she also molested me) experience with an endocrinologist a few months ago trying to find out what the lumps in my thyroid gland are.
So I am really with you on the level of trauma this causes.
But please don't just leave it here, take our words of support and encouragement and just keep on fighting, look for a new doctor, and don't give up.
xxxxx
Indigo, what level of qualification did that ophthalmologist have?
If he didn't know about lyme disease I would say you just didn't find someone sufficiently qualified.
I seriously would try to find someone good enough to help - i don't know the classes of qualifications in the US... can anyone else help?
If you can't find an LLMD get a holistic md! That's the only way I was able to get abx til I got in with the LLMD. Make sure they are an actual md first. You will still have to pay out of pocket, but you will get what you need. They can fit you in quickly, so no wait list and they can work with you on herbs for treatment as well. They usually won't do IV abx or Igenex testing, so still look for an LLMD, but I think holistic is the best way to go in the meantime. I found mine when I was desperately searching for NDT back when I just thought I had Hashimoto's. google NDT holistic doctor in [your state] and see what pops up. The reason why is usually if you can find a doc that will prescribe NDT then they are a very understanding, willing to do anything for you, doc - will treat Lyme as well!
Don't worry about the crying bit! I cry in every doctors office. I was told by one a-hole that I was suffering from postpartum depression when I started to cry. I just grabbed my purse as soon as she said it and walked out of the office. I can't wait to rub Hopkins' biopsy findings in her face!
Hang in there and get thee a holistic med!
Bummer. You mentioned double vision. Had that problem when I was going through an encephalopathy. Nothing like driving in the city and seeing up and down doubles of all the lights. Luckily had my brother with me and let him drive. You need something. Although there's not a bunch of medicinal chemicals in them, try some strong mint tea for now.
That's too bad! :(
But don't give up trying to find a doctor (of any kind) who might treat you. Some (all?) osteopaths (D.O.) might be able to help and some of them aren't as into Lyme denial as a regular M.D. They can rx drugs just as an M.D. does.
In NM a chiropractor can rx antibiotics. But the licensing varies widely from state to state. You might have to check your state but it's not common at all.