got into opthamologist! gonna try for abx!

[IndigoRiley]

I got into an appt for tomorrow ophthamologist! Thankyou for suggesting it! &i Btw u guys are GREAT! THIS COMMUNITY IS AMAZING! &sooo helpful! Will the opthamologist actually be able to tell if the Lyme has affected my eyes? I hope so bc it most definitely has! What should expect or be prepared for? Like how do i get him to give me antibiotics?

[IndigoRiley]

I have no idea..but I am running  low on antibiotics and I was gonna try and to make a possible ER run but then I remembered I had a referral from a couple mos ago due to my eye issues (blurred vision, double vision, light sensitivity). And someone on here(I believe cave..sry if it was someone else my brainfog has kicked in along with my child not listening to me or going to sleep right now, and I can no longer "multitask" like before, and I get irritable with little noises that distract me which just plain ***** bc I feel like it is affecting my parenting) Anyway, I don't know what kind he will give me but I haven't found an LLMD so I am hoping maybe this guy will see signs of Lyme in my eyes..? Hopefully.

[IndigoRiley]

I hope so too! Like I said I have had double vision, blurred vision for a little over a year now. It gets pretty bad some days. I am excited about this appt and I sure do hope he finds something that can prove once and for all that I have Lyme Disease! Wishful Thinking I know..

[leilajax]

Is it a neuro-opthamologist that was able to see the damage?  I went to an opthamologist when all of this started going downhill fast and he got the ball rolling on getting to a diagnosis (starting with rheumatology).  He referred me to a neuro-opthamologist also, but I instead went to rheumatologist and moved from there.  My LLMD asked me today if I ever saw the neuro eye doc that I was referred to and when I said no she was visibly disappointed.  I've just seen a billion doctors, so I thought I could skip that one.  However my vision is really getting bad.  Sometimes double vision, like the world is a collidoscope (sorry worst speller in the world on top of brain fog and a phone that changes my spelling to words I don't even mean to type = a mess).  Also, blurry vision is very bad!  I can read but it takes a long time for my eyes to switch focus.  I write "slow to focus" on all of my medical forms.  Do you think I should follow through with the neuro eye doc?

[JackieCalifornia]

What is the treatment?  antibiotics, and if so, what kind(s)?  just wondering.

Glad you found a good doc!

[mojogal]

My opthomologist knowing I had Lyme sent me to a Lyme aware Retina specialist where he was able to see the damage to my optic nerves caused by Lyme. We are treating it now.

[cave76]

I have had to wear glasses for a long time---- pre Lyme for reading and close work mostly. Although I'm sure that some of my vision changes are aging related and I know that my eyeballs are shaped/oriented in different ways which causes my astigmatism------ I also wondered if Bart was the reason for other problems with my eyes: photo sensitivity for one.

I happened to be living in a large city then that had a neuro-opthamologist who was very much respected in the medical and patient community. So---- I finally got in with him. I've never had such a long VERY long series of tests before. His nurses warned me about that---- and the fact that he didn't talk much. :) He didn't blow off Lyme and did seem to accept what Bart might do to vision.

Anyhoo----bottom line------ some changes in my glasses but he didn't see optic neuritis or anything that 'proved' an infection-cause. I think I trust his evaluation simply because he didn't seem to have any kind of agenda----- just thorough investigation. But he didn't have me take an MRI of the optic nerve, which might have shown demyelination of the optic nerve----- Maybe because nothing in my health history suggests MS.

I don't think that means that Bart. isn't responsible---- just that nothing presented as if.

@Indigo--- there are non-neuro opthamologists that have found inflammation in the eye----- so, as strange as this may sound, should I hope s/he does? (grin)