lyme diagnosis but can't get antibiotics wtf

[krazieamc]

so i have been dealing health issues for the beeter part of 4yrs now. severe fatigue heart palps tachycardia but all ekgs come back fine, as of the last 4-6 months been forgetting where i am or why i went to wherever i might be tons of muscle ticks(yes pun intended), severely stiff neck that comes and goes, muscle fatigue/weakness, bad headaches, dizzyness. i'm sure there is more but i don't have all the symptoms all the time so.. anyway i finally found a dr (a naturopath) who mentioned lyme about 1 year ago so i slowly started getting tests done as i have no medical and must pay out of pocket. he convinced me to get the igennix lyme test got the results on mon the 12th of nov. he says i have lyme though doesnt meet the cdc criteria. now i find out he doesnt like to prescribe antibiotics and wants me to do soome 2 month detox program, get checked for heavy metal toxins and treat that if needed, also remove/replace any metal fillings then and only then would begin to actually kill of the da&n spirochetes. wtf! i have lost my job my house missed out on the first year of my daughters life and now can't get antibiotics? here are the results of the igenex test:

IGM                                    IGG
18kda = ++++                     18kda = -
23-25kda = IND                    23-25kda = -
28kda = -                            28kda = -
30kda = +                           30kda = -
31kda = +                           31kda = IND
34kda = ++                         34kda = -
39kda = IND                        39kda = IND
41kda = ++                         41kda = ++
45kda = -                            45kda = -
58kda = +++                       58kda = ++
66kda = -                            66kda = -
83-93kda = ++                    83-93kda = -
any and thoughts much appreciated thanx

[Ricobord]

I have had chest pain, too, mostly in the area of my sternum.  I have also had terrible abdominal pain, which stumped multiple mainstream docs. I think I also had Lyme in and around where my diaphragm connects to my ribs. And my stomach hurt for a year. All known Lyme symptoms.  Sorry you're herxing so much.  If your shortness of breath is accompanied by sweats, you might also have Babesia.  After nearly two years of chronic shortness of breath and air hunger, we finally figured out that I have Babesia.  I tested negative three times, so testing was not helpful for me.

Robyn - Very interesting to hear you all have rib pain!  I have had very bad and persistent rib pain. After over a year, I am now down to chronically sore ribs.  It is not a very common symptom here in CA or even in the US from what I have read from others.  I wonder if it is more common in Aussie Lyme?  My collection of symptoms looks more like Borrelia Garinii, a European species, which I read (on Dr. Mayne's web site) has been identified in Oz.

[JackieCalifornia]

Sounds like progress.

Also be aware that Lyme bacteria like to live in places where the immune system can't see them and therefore can't destroy them.

One of those hidden places is cartilage, which has relatively low blood flow compared to say muscle.  Your chest discomfort may be because of the cartilage that loops from the ends of your ribs to the breastbone (sternum) being irritated by Lyme bacteria -- and your knees too, but I'm NOT medically trained, so this is just a thought for your consideration.

Are you taking magnesium supplements?  Lyme bacteria are, so I read, greedy users of magnesium (Mg) in their reproductive process, and lack of Mg can lead to muscle twitches, cramps and aches, as well as other misc. misery.  Might have mentioned this before, but taking Mg supplements (any variety ending in "-ate", like Mg citrate, aspartate, malate, etc) are said to be the most absorbable.  It's also very soothing generally.  I still take it, since the American diet is said to be low in it.  

Be sure if you take supps that you always tell your doc (sometimes they forget to ask) what it is you are taking and how much each day or how often if not daily.  Supps can change your symptom array, and that can throw off the doc's diagnosis and treatment plans.

Having Lyme ain't for wimps, that's for certain.

[krazieamc]

so i guess i'll mention the other stuff. i have been on the samento/banderol stuff for 14 days now and aside from the chest pain and all the stuff i mentioned previously. my muscle twitches and ticks have been almost nonexistent, the joint pain comes and goes instead of all the time, my focus is alot better and i'm not mispelling words as bad or using words incorrectly etc... my fatigue is better if nofor the chest issues i'd probably feel pretty good. so, dunno if it's coincedence or if the herbs are helping.

[krazieamc]

well thank you for the responses. as far as rib pain not surre if that is my issue as most of my pain is the center of my chest and upper abdomen. very frustrating, sometimes gi cocktail helps sometimes it doesnt nitro has helped before but not always either. i guess my biggest concern is wether it is heart pain like angina or somethin else, and so far i can't get any dr's to consider checking my heart beyond an ekg. on the one hand it makes sense as far as my age, but i do smoke and used to have a horrible diet and heavy drinker and now havent been able to exercise for the last 4 or 5 months. but the lack of exercise has been due mainy to the tachy and not chest pain anyhow guess i'm kind of venting at this point. lol

[Robyn072]

We get lots of rib pain with our symptoms too. All of us!

[Robyn072]

My daughter at 13 started having tachycardia, chest pain, air hunger, dizziness and headaches. They gave her an ECG (abnormal) and put her on a halter monitor.  Her button pressing to mark her pain correlated with tachycardia. Sent her for an echocardiogram and a cardiac stress test which both came back normal....very frustrating. She was never given a diagnosis.....well we know what it is now.