lyme diagnosis but can't get antibiotics wtf

[krazieamc]

so i have been dealing health issues for the beeter part of 4yrs now. severe fatigue heart palps tachycardia but all ekgs come back fine, as of the last 4-6 months been forgetting where i am or why i went to wherever i might be tons of muscle ticks(yes pun intended), severely stiff neck that comes and goes, muscle fatigue/weakness, bad headaches, dizzyness. i'm sure there is more but i don't have all the symptoms all the time so.. anyway i finally found a dr (a naturopath) who mentioned lyme about 1 year ago so i slowly started getting tests done as i have no medical and must pay out of pocket. he convinced me to get the igennix lyme test got the results on mon the 12th of nov. he says i have lyme though doesnt meet the cdc criteria. now i find out he doesnt like to prescribe antibiotics and wants me to do soome 2 month detox program, get checked for heavy metal toxins and treat that if needed, also remove/replace any metal fillings then and only then would begin to actually kill of the da&n spirochetes. wtf! i have lost my job my house missed out on the first year of my daughters life and now can't get antibiotics? here are the results of the igenex test:

IGM                                    IGG
18kda = ++++                     18kda = -
23-25kda = IND                    23-25kda = -
28kda = -                            28kda = -
30kda = +                           30kda = -
31kda = +                           31kda = IND
34kda = ++                         34kda = -
39kda = IND                        39kda = IND
41kda = ++                         41kda = ++
45kda = -                            45kda = -
58kda = +++                       58kda = ++
66kda = -                            66kda = -
83-93kda = ++                    83-93kda = -
any and thoughts much appreciated thanx

[krazieamc]

question aboot herxing. most of what i could find inline said symptoms of a herx was stuff like fever and tiredness and basically flu like stuff. i seem to be just experiencing the i guess lyme symptoms worse than before i started the treatment plan. so my question is can a herx reaction just exacerbate whichever symptoms that i have already been experiencing?

[Ricobord]

Not everybody has herxes.  And herbs don't usually pack as much of a punch as abx, so you're less like to have noticeable herxes.  (Except A-Bart...I've heard of significant herxes on that one.)

With four years of illness, you could be looking at a year or more of treatment, so think of it as a marathon, not a sprint.  Progress can be frustratingly slow sometimes.  Sometimes it's even two steps forward, one step back.  Just look at the overall picture to see if you're improving.

I even had brand new symptoms show up months after I started treatment. That was really annoying.  I was loaded up with antibiotics, how could it have moved to a new place??  Such is the nature of Lyme. You have to keep up the relentless pressure on it to beat it into submission, or like a chained attack dog, it will lurch forward if you give it slack.

It sounds like your NP is learning by doing.  If you are confident that it is Lyme, he'll feel better.  I know, it should be the other way around, but it is what it is.

We recently saw someone post here about Brucellosis. While usually associated with cattle/dairy and dogs, it is also tick borne.  It has almost the same presentation as Lyme Disease, and can be as difficult to treat.  If you have doubts about Lyme, you could always ask to be tested for Brucella.  

[krazieamc]

random update i gues, i started the samento/banderol stuff 4 days ago and yesterday and today my heart palps, tachy and general chest pain seems a little better. the frequency, severity and duration has decreased at least. also fatigue is a little better not great but enough that i noticed. knees, hands, shoulders and back still hurting and headaches still there. not sure if i am gonna say the herbs are helping or if its just a coincedence but... time will tell i spose. going to cardiologist tomorrow to do another holter monitor i'm sure nothin will show up but worth a shot i guess. no sign of herxing, which seems to be making my naturopath concerned(?). he still seems unsure about the lyme diagnosis. i can definately say his seeming lack of confidence doesnt help at all and has me questioning if it really is lyme. annoying.... anyway hope everyone had a great thanksgiving g'night

[Ricobord]

When I had to stop prescription meds to let my kidneys rest, I was put on Samento and Banderol. They are the two most common anti-Lyme herbals that I have heard of.

I did end up using a different brand of Cat's Claw than Samento. That was the first time I had a herx on herbals so I know it worked.  (I had read an article explaining that while TOA free Cat's Claw was more effective, the same benefit could be seen with a higher dose of the regular Cat's Claw. I just followed the directions on the bottle.)

Sounds like you're off to a good start.  

[krazieamc]

ok update time : ) just got home from naturopath he has started me on samento, banderol and a crazy expensive garlic. so 300 dollars later i at least have a first attempt at treating this junk. the plan is to try these for a month and if nothing happens then switching to doxy. so i guess i just wait and see. anyone used or tried any of these?

[youvegottobekidding]

No, definitely don't tak abx without a doc guiding you.Amox alone may not be the right thing, and 2 weeks of any antibiotic isn't enough to do anything useful against lyme anyway.
I know it's really frustrating but doing it yourself is too risky.  :(