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lyms are killing me head is pounding feel infected
Hi all i am 22 male I just thort I need to explain how I am feeling as nothing is working for me. hope you read this and can help me or who is going through this what is it I have because its killing me off ! basically i have been getting some abnormal sensations going off in my body and i have felt like different like not here kind of thing. nothing seems right at all ! other people speech actions etc seem weird and that is kind of freaking me out. i have head aches constant with a horrific smell of burning in my nose to my brain and its not when i sniff up its like sense what comes and it triggers a major head ache strate after and it does not stop for hours . 2years ago i only suffered from mild head aches and i used to smell burning not often but used to get it so i had a MRI Brain scan which came back normal ok i got told it could be the classic stress and anxiety problem which i accepted. after months going bye it was not getting better what so ever even tho i stopped drinking at the weekends which could of coursed it and still had no better symptoms. so carried on and it all calmed down for 6 months or so and i was getting on with my life. then after the months had gone bye i started getting like pains in my alms legs which sent them numb and a dead pain where they kind of felt infected. again leaving the problem because the docs didn't find anything last time they have got a whole lot worse meening i am in serve pain from head to tow and my muscles feel like there under attack the headaches pounding me and the smell of burnt rubber is hurting my head and nose feels blank. it gets worse at night like i am lieing down in my bed and i like hold my body and i feel like its the flu in my head and body shivers so bad and the pain is so bad. i slure my speech a lot of the time and its worse at night my head feels so heavy i can barley walk body feels chronic pain and so on ! . when some of the symtoms come on in the day which is every day now i get agitated and a storm of depression and anxiety comes on witch personality problems so all this is also leading to the mental side of me ! which is not me at all and other people are even recognising the impatience and the stress and cant sit still but its not me the symtoms are driving me to these outbursts! and my memory is terrible i cant remember what i did the night before and how i got to bed and what time i went to sleep so on ! i am forgetting how to do simple tasks and even reading simple words or spelling words this is worrying me if i am being honest. what can make u forget how to spell .. forget how to read slur speech constantly and get these head aches its something and its not anxiety i don't have a clue where to start are my lyms and body infected ? hurting so much its hard to describe properly they hurt that bad i can barley walk and i feel like so dumb from it ! right fore head a impact deep burning pain witch kills my head all day every day like a constant migraine that never leaves me. i get burning sensations in my eye and it makes it blurry for a hour or so which happens 2-3 times a day burning and tingle in my head and face constant and again that doesn't really leave me. some times in the evenings mostly i get like a abnormal shakiness in side my body which makes my jaw chatter and my my body for no reason what so ever kind of like i seizure is on coming or started ! i just don't no what to do because this is getting out of control .. the symtoms are all these (smell burning) (head pounds burning right side) (memory loss) (lyms feel infected head to tow) hard to (hold my body up sometimes) (burning in eyes and face) etc all what i have posted in this story there is so many and its hard to stress it anough . if u can reply many thanks for reading this and any help would be massive thanks .
Hi there. You'll be happy to know you are not alone.
Yes, unfortunately it is very common to have the brain fog. Memory loss became my issue too. It does get better with treatment but for me, I have the Lyme co- infection called Bartonella and it gave me brain lesions. That caused more neurological issues.
I had periods of blindness and muscle weakness and couldn't open the fridge before. I was barely walking with a cane.
After 18 months of treatment, I have greatly improved but my brain issues are still there a bit. I had a friend that recovered I already have a subscription to allure and don't want another one. A friend recovered after 3 years. Some less time. It depends on your co-infections.
I see from the older posts that you were told to find an LLMD. Any luck there?
Yes, unfortunately it is very common to have the brain fog. Memory loss became my issue too. It does get better with treatment but for me, I have the Lyme co- infection called Bartonella and it gave me brain lesions. That caused more neurological issues.
I had periods of blindness and muscle weakness and couldn't open the fridge before. I was barely walking with a cane.
After 18 months of treatment, I have greatly improved but my brain issues are still there a bit. I had a friend that recovered I already have a subscription to allure and don't want another one. A friend recovered after 3 years. Some less time. It depends on your co-infections.
I see from the older posts that you were told to find an LLMD. Any luck there?
Yea I've been to the doctors many of times I have a brain wave test coming up. No 1 has diagnosed me with Lyme disease I need help fast unless its something serious because this last 2 weeks I don't know what I am doing. Can Lyme disease do these things what I've listed above seriously because I can't carry on like this I feel as if my brain is failing on me. I am forgetting how to read write spell etc when somebody speeds to me I can't barley understand them. I can't remember how to do simple tasks my speech is sluring and I'm not stuttering . I get migraine head aches what can't be described in words and the Smelling burning is getting worse and worse my muscles are killing me I feel dizzy nothing makes sence to me at all. If somebody asked me to do something I don't no what I'm doing my pimples dilate my eyes are blurry ! I can't function what's so ever It feels like I am developing brain damage and when I researched lyme it all came up . Have any of you experienced this what I'm saying ? And will this go away because everyday it's getting worse my memory is failing on me I feel completely dumb the only thing positive I am recogniseing is acually knowing something is wrong, I feel seriously ill and no body can tell me why doctors won't do any more tests but the symptoms are multiplying day bye day and the symptoms are bazzare ! I know I've explained up top but will this permanently stay with me ? I'd it's not lyme then I am totally screwed because there's no other path I can go down. It's a battle to keep contact with reality and my ability to understand things I am confused ! How can I just forget how to read properly say words properly I often forget what words meen I can't even spell in serve pain every where . His can it effect my brain ? And will there defiantly be a full recovery I am not in my own town for 2 weeks so I can't get help even tho they won't help me anyway uh doing a brain scan will rule out tumours etc but I feel brain damaged from it my head is burning muscles burning eyes are everywhere where can I go !? But even somebody telling me something with in 2 minutes I don't know they even told me I'm 23 what is going off ?? I can't deal with this any more I can't think anymore ! Classic Lyme? Or should I give its where these symptoms make full sence tho ? If you no or experienced this please reply or even point me in the right directions thank u again .
Yea I've been to the doctors many of times I have a brain wave test coming up. No 1 has diagnosed me with Lyme disease I need help fast unless its something serious because this last 2 weeks I don't know what I am doing. Can Lyme disease do these things what I've listed above seriously because I can't carry on like this I feel as if my brain is failing on me. I am forgetting how to read write spell etc when somebody speeds to me I can't barley understand them. I can't remember how to do simple tasks my speech is sluring and I'm not stuttering . I get migraine head aches what can't be described in words and the Smelling burning is getting worse and worse my muscles are killing me I feel dizzy nothing makes sence to me at all. If somebody asked me to do something I don't no what I'm doing my pimples dilate my eyes are blurry ! I can't function what's so ever It feels like I am developing brain damage and when I researched lyme it all came up . Have any of you experienced this what I'm saying ? And will this go away because everyday it's getting worse my memory is failing on me I feel completely dumb the only thing positive I am recogniseing is acually knowing something is wrong, I feel seriously ill and no body can tell me why doctors won't do any more tests but the symptoms are multiplying day bye day and the symptoms are bazzare ! I know I've explained up top but will this permanently stay with me ? I'd it's not lyme then I am totally screwed because there's no other path I can go down. It's a battle to keep contact with reality and my ability to understand things I am confused ! How can I just forget how to read properly say words properly I often forget what words meen I can't even spell in serve pain every where . His can it effect my brain ? And will there defiantly be a full recovery I am not in my own town for 2 weeks so I can't get help even tho they won't help me anyway uh doing a brain scan will rule out tumours etc but I feel brain damaged from it my head is burning muscles burning eyes are everywhere where can I go !? But even somebody telling me something with in 2 minutes I don't know they even told me I'm 23 what is going off ?? I can't deal with this any more I can't think anymore ! Classic Lyme? Or should I give its where these symptoms make full sence tho ? If you no or experienced this please reply or even point me in the right directions thank u again .
Yea I've been to the doctors many of times I have a brain wave test coming up. No 1 has diagnosed me with Lyme disease I need help fast unless its something serious because this last 2 weeks I don't know what I am doing. Can Lyme disease do these things what I've listed above seriously because I can't carry on like this I feel as if my brain is failing on me. I am forgetting how to read write spell etc when somebody speeds to me I can't barley understand them. I can't remember how to do simple tasks my speech is sluring and I'm not stuttering . I get migraine head aches what can't be described in words and the Smelling burning is getting worse and worse my muscles are killing me I feel dizzy nothing makes sence to me at all. If somebody asked me to do something I don't no what I'm doing my pimples dilate my eyes are blurry ! I can't function what's so ever It feels like I am developing brain damage and when I researched lyme it all came up . Have any of you experienced this what I'm saying ? And will this go away because everyday it's getting worse my memory is failing on me I feel completely dumb the only thing positive I am recogniseing is acually knowing something is wrong, I feel seriously ill and no body can tell me why doctors won't do any more tests but the symptoms are multiplying day bye day and the symptoms are bazzare ! I know I've explained up top but will this permanently stay with me ? I'd it's not lyme then I am totally screwed because there's no other path I can go down. It's a battle to keep contact with reality and my ability to understand things I am confused ! How can I just forget how to read properly say words properly I often forget what words meen I can't even spell in serve pain every where . His can it effect my brain ? And will there defiantly be a full recovery I am not in my own town for 2 weeks so I can't get help even tho they won't help me anyway uh doing a brain scan will rule out tumours etc but I feel brain damaged from it my head is burning muscles burning eyes are everywhere where can I go !? But even somebody telling me something with in 2 minutes I don't know they even told me I'm 23 what is going off ?? I can't deal with this any more I can't think anymore ! Classic Lyme? Or should I give its where these symptoms make full sence tho ? If you no or experienced this please reply or even point me in the right directions thank u again .
Amitryptilne is sometimes prescribed for people with mysterious nerve pain. It is an old medication, a tricyclic antidepressant. Over time, docs discovered that it seemed to ease the pain of some people with neuro pain and pain of autoimmune diseases.
I was put on Nortriptyline, another tricyclic, to help me "sleep" by a neuro when I was hospitalized. It really did help me sleep, so I stayed on it. When I got it refilled, I read the info sheet and realized it was an antidepressant. I thought the neuro tricked me into taking it, calling it a sleep med when maybe she really thought I needed an antidepressant. But then my GP explained how these meds affect the way the brain processes pain signals. Then the neuro's decision to give me this med made more sense.
I still think the neuro should have been honest with me about the drug, but it worked out okay. I finally weaned myself off it a few days ago after taking it for a year and a half. I stayed on it so long as I was dealing with the depression that sometimes comes with Babesia. I seem to be past it. Well, at least so far.
If either of these two meds helps with pain, sleep, or depression, then that is a benefit as far as I'm concerned.
You might ask one of your docs (the most sympathetic one) if they'd be willing to send your blood off for tests at InfectoLab in Germany. They have really good Lyme antibody tests that look for the different species found in Europe.
Did you ever get tested in the UK? It just seems to me (total hearsay) that a lot of people with chronic lyme there test false negative. It sounds like the species/strain they're using in their lab test kits just isn't useful there.
I was put on Nortriptyline, another tricyclic, to help me "sleep" by a neuro when I was hospitalized. It really did help me sleep, so I stayed on it. When I got it refilled, I read the info sheet and realized it was an antidepressant. I thought the neuro tricked me into taking it, calling it a sleep med when maybe she really thought I needed an antidepressant. But then my GP explained how these meds affect the way the brain processes pain signals. Then the neuro's decision to give me this med made more sense.
I still think the neuro should have been honest with me about the drug, but it worked out okay. I finally weaned myself off it a few days ago after taking it for a year and a half. I stayed on it so long as I was dealing with the depression that sometimes comes with Babesia. I seem to be past it. Well, at least so far.
If either of these two meds helps with pain, sleep, or depression, then that is a benefit as far as I'm concerned.
You might ask one of your docs (the most sympathetic one) if they'd be willing to send your blood off for tests at InfectoLab in Germany. They have really good Lyme antibody tests that look for the different species found in Europe.
Did you ever get tested in the UK? It just seems to me (total hearsay) that a lot of people with chronic lyme there test false negative. It sounds like the species/strain they're using in their lab test kits just isn't useful there.
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