lyms are killing me head is pounding feel infected

[Ki3r]

Hi all i am 22 male I just thort I need to explain  how I am feeling as nothing is working for me. hope you read this and can help me or who is going through this what is it I have because its killing me off ! basically i have been getting some abnormal sensations going off in my body and i have felt like different like not here kind of thing. nothing seems right at all ! other people speech actions etc seem weird and that is kind of freaking me out. i have head aches constant with a horrific smell of burning in my nose to my brain and its not when i sniff up its like sense what comes and it triggers a major head ache strate after and it does not stop for hours . 2years ago i only suffered from mild head aches and i used to smell burning not often but used to get it so i had a MRI Brain scan which came back normal ok i got told it could be the classic stress and anxiety problem which i accepted. after months going bye it was not getting better what so ever even tho i stopped drinking at the weekends which could of coursed it and still had no better symptoms. so carried on and it all calmed down for 6 months or so and i was getting on with my life. then after the months had gone bye i started getting like pains in my alms legs which sent them numb and a dead pain where they kind of felt infected. again leaving the problem because the docs didn't find anything last time they have got a whole lot worse meening  i am in serve pain from head to tow and my muscles feel like there under attack the headaches pounding me and the smell of burnt rubber is hurting my head and nose feels blank. it gets worse at night like i am lieing down in my bed and i like hold my body and i feel like its the flu in my head and body shivers so bad and the pain is so bad. i slure my speech a lot of the time and its worse at night my head feels so heavy i can barley walk body feels chronic pain and so on ! . when some of the symtoms come on in the day which is every day now i get agitated and a storm of depression and anxiety comes on witch personality problems so all this is also leading to the mental side of me ! which is not me at all and other people are even recognising the impatience and the stress and cant sit still but its not me the symtoms are driving me to these outbursts! and my memory is terrible i cant remember what i did the night before and how i got to bed and what time i went to sleep so on ! i am forgetting how to do simple tasks and even reading simple words or spelling words this is worrying me if i am being honest. what can make u forget how to spell .. forget how to read slur speech constantly and get these head aches its something and its not anxiety i don't have a clue where to start are my lyms and body infected ? hurting so much its hard to describe properly they hurt that bad i can barley walk and i feel like so dumb from it ! right fore head a impact deep burning pain witch kills my head all day every day like a constant migraine that never leaves me. i get burning sensations in my eye and it makes it blurry for a hour or so which happens 2-3 times a day burning and tingle in my head and face constant and again that doesn't really leave me. some times in the evenings mostly i get like a abnormal shakiness in side my body which makes my jaw chatter and my my body for no reason what so ever kind of like i seizure is on coming or started ! i just don't no what to do because this is getting out of control  .. the symtoms are all these (smell burning) (head pounds burning right side) (memory loss) (lyms feel infected head to tow) hard to (hold my body up sometimes) (burning in eyes and face) etc all what i have posted in this story there is so many and its hard to stress it anough . if u can reply many thanks for reading this and any help would be massive thanks .

[youvegottobekidding]

Hello!

What you described sounds exactly like classic and severe lyme disease symptoms to me.

Getting "phantom" smells is a well known lyme symptom and the commonest one is burning. When I was in the lyme disease clinic in Germany, 3 of the 9 patients there had this burning smell all the time.

The "infected limbs" you feel is also a symptom I get so much, and I had the spelling problems too - in fact for one year I was completely unable to read or write.

Anyway, what you need is to find a doctor who specialises in lyme disease and don't waste your time and money on other doctors, as ones who do not specialise in it usually don't know how to recognise the symptoms and even if they do, they don't give you enough antibiotics to cure it.

Email www.ilads.org immediately and ask them to recommend a few lyme specialist doctors in your area.
They will be able to tell you which lab to get tested at (i.e. a reliable one) and give you the right treatment.

Good luck and stay in touch, OK?

[cave76]

That was a very nice post. Thank you.

[JackieCalifornia]

Welcome to MedHelp -- whether or not you have Lyme disease, we can't say, but I think you are doing the right thing to consider it as a possibility.

There is a split in the medical community on how serious Lyme is, but anyone who has had it does take it seriously, and there are MDs who also take it seriously.  The trick is finding an MD approaches it aggressively.
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Some ideas:

1 -- We have had some posters here who are in the UK, so you might post a new brief message titled something like "Need LLMD near Nottingham, England" and that may catch someone's eye here.

2 -- I would also do an online search for something like

                   -- nottingham lyme disease --

I just did that and got some interesting links to follow in your area.  There is often a Lyme 'community' in a particular area, and they know who the good physicians are and how to get effective treatment.

3 -- search online for

                   -- england "lyme disease" --

and you will find links to patient-focussed groups that often have excellent information on how to find a physician who understands Lyme.  The "quote" marks around 'lyme disease' are needed in the search, otherwise you pick up many links referring not to the disease, but to Lyme Regis in Dorset.
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If you do not have Lyme or other infections the same ticks often carry, a Lyme specialist will tell you that.  The problem is with non-Lyme-specialists, who all too often do not factor in Lyme as a possibility in considering a diagnosis, and if they do factor it in, they often do not give appropriate treatment, which leaves the infection in place.

Best wishes to you -- let us know if we can help further --

[cave76]

I'm sorry you're having such an awful time.
You didn't mention the types of doctors you've seen---- or the medications they've tried for you----  or the results of those medication.

I see, on your profile, that you're desperate and have posted on many different forums in your attempt to find help.

Your list of problems is disturbing and I can see why you're trying to find some help but none of us here are doctors and even a doctor couldn't diagnose you via the Internet.

Please find a doctor. If s/he doesn't help you, find another one. I hope you can find some help.