I have problems with my shins as well. Sometimes they hurt but it's usually just a burning pain. Don't get it anywhere in my legs but my shins and occasionally the tops of feet.
In my non-expert opinion, I think trying to get a test through your neuro is a fine course of action. I exhausted my options before seeking an LLMD. The "final straw" for me was when my PCP refused to order a Western blot, refused to Rx even a short trial course of antibiotics, and told me that she had done all she could to help me.
I'm in the same boat as you--no recollection of a tick bite or bull's eye rash in my life. I can trace the onset of my obvious symptoms to a serious bout of other illness and stress. I suspect (but will never know) that I was exposed to Lyme at some point earlier in life and that it went dormant or hide in my body and finally woke up and took over at this time.
I'm glad that at this stage you feel annoyed, but not debilitated, by whatever is causing your symptoms. Please do keep in mind that if you have Lyme, time is of the essence, and the longer you wait, the longer, more difficult and complicated your treatment will be. I also think it sounds like you have Bartonella, and Lyme testing will not show this, nor will Lyme antibiotics treat it. If you don't get answers and/or your symptoms persist/worsen, then please continue to question if Lyme and tick-borne infection could be the causes.
I dont get any sinus infections or throat problems but I guess symptoms vary I havent been diagnosed either yet but have found a LLMD at least they are a Naturopath,havent been yet.I get awful skin problems ,was bitten by a tick, and was sick a few weeks later,that was 21years ago, I have a lot of aches and pains at presant, and practically every other symptom the other members mention here, had a Lyame test once 15 years ago, regualr Physician, came back normal, been sick on and off through the years but think anti biotics I took including Biaxin for Pnuemonia, kept it in Remission, I had a trauma May last year and I think it triggered it off again...Hey Ho ..
I am quite familiar with the shin pain. I don't know what it is though. I suspect in my case it's more nerve pain.
I have the heart pounding too. Mine is from my fast heart rate.
Also forgot to mention that my sinus/congestion problems pop up every month or so where I get terrible sore throats and congestion.
My neuro told me my mri showed a sinus infection but told me I didn't need antibiotics unless I was having symptoms. Thank god the cold symptoms go away on their own after some time.
I have not found an LLMD yet. I am hoping that my neurologist will test me for lyme when I see him in two weeks. If he won't then I will look for an LLMD. I feel silly about looking for an LLMD because I have never been bitten by a tic (to my knowledge) and I don't feel particulary sick..just alot of annoying symptoms (tingling, twitching, eye issues, shin pain, neck cracking, heart palpatations etc).
Some things do worry me though. When I work out, I feel my heart pounding more than usual and I get easily out of breath with little to no activity. I checked my blood pressure and it was 119/75 which is good, so I don't know what is going on. So in that sense I want to find out what is going on. I just wish I had more "classic symptoms of lyme to make it easier.
Anyways thanks for your response. Depending on what my neuro will do will determine what actions I take regarding an LLMD. Does this sound like a good idea or should I go directly to an LLMD?
-Sarah
It makes sense, I get this to a "t" (tea? tee?). 75 minutes is longer than what it takes for me, within moments I start to gel/seize up, but it started more like how you put it.
The tightness in my calves often feels like a cramp, but without the whole muscle being involved (if THAT makes any sense). Never felt anything like this before.
My leg pain can be severe, but thankfully is not always. Also, while walking from a cold start can be stiff and painful, if I stretch and warm up, I can exercise and not have too much trouble. It is actually therapeutic for me.
Pain in the shins, is a symptom often associated with the Bartonella-like co-infection. (I have it, actually have a picture on my fridge from Fry labs that shows it in my blood.) Bartonella responds to different antibiotics than Lyme.
Have you found an LLMD yet? If you have a co-infection, which seems likely in my unprofessional experience, an good LLMD will be equipped to test and treat.
If you are a student, you probably want to wait until the end of semester since treatment can make you worse for awhile. But since there is often a pretty long wait to get in, and since tick season is upon us, finding a doc now and getting the initial appt. set up would be ideal. (I apologize if you've already found a doc, I can't keep all of the background straight!)