Pulsing and vision changes

[lyraonyx]

I'm 24 years old and for the last 2 years I've been having problems with odd ... headaches?  Seizures?  I'm not sure what they are, but what happens is I lose my vision, hearing, and can't move.  Feels like I'm going to pass out but I never lose consciousness. Sometimes I'll feel it coming on.  I am sort of aware of what my body is doing at this time, but it seems foggy.  Then my head will pulse hard once or twice, I'll hear some odd sound kind of like a buzzing sound.  Then I come back to normal.  It only lasts for a second or two, but it will keep doing it sometimes every few seconds for several hours or even days.  I've had an mri that was normal but no other testing has been done.  it seems to become more frequent if I'm tired but can happen at any given time.  It doesn't really hurt when it happens but it is annoying and scary.  Any advice would be appreciated.

Lyra

[Vanessa Lacuesta]

Hi

Yes. Do discuss this with your physician .An EEG is the diagnostic of choice if a seizure episode is suspected. A 24 hour EEG may actually shed more light especially when you are trying to delineate migraine headaches and true seizures.

Do keep us posted with regards to your progress. I do hope things will be better from here

.

[lyraonyx]

thanks, i'll look into that!  

Lyra

[Vanessa Lacuesta]

Hi

Based on what you have posted , this seems like seizure episodes. Seizures as I have previously mentioned need not be the typical ones like generalized tonic clonic seizures. They may present differently. Others may present with some aura like visual spots or may present as a particular smell prior to the seizure attack.
An MRI may not be able to tell if you are having a seizure disorder or not although any significant findings may be able to help explain your condition. In your case however, the scans came back negative. An EEG is the diagnostic of choice if  a seizure disorder is suspected.

[lyraonyx]

Oh also I forgot to mention in the original post that I do seem to have some kind of weird eye movement when this happens. Obviously I can't tell for sure what they're doing, but it seems to me that they're crossing or rolling back for a second while this happens.  I can feel them move but I can't really control it.

[lyraonyx]

I don't notice headaches, no.  The pulsing is not a pleasant sensation but it really doesn't hurt.  It's been going on for about two years now.  I have seen a couple of doctors, but not a neurologist yet.  My insurance ran out a couple years ago so i couldn't afford to continue pursuing it.  Also my doctor really didn't seem to take me seriously so I kind of tried to ignore it too.  But they won't go away, so maybe I need to see a different doc.

Thanks for your advice!

Lyra

[Vanessa Lacuesta]

Hi

I suggest you have this assessed by a neurologist. This may be a partial seizure. These seizure types may not present with the convulsions noted in the more generalized tonic clonic seizures. You have noted that you also have headaches accompanying these?

For how long have you noted this ?

Have you ever been assessed by a physician with regards to your symptoms?