i was put on prednisone for a while because i was having chest pains and my inflammation levels were elevated. the medicine made me feel so sick and the chest pains got worse. my heart rate would be close to 200bpm my doctor quickly instructed me to stop taking it and said it was doing me more harm than good.
they told me there is no need for me to take any medications because there is no evidence of a disease. i take a low dose anti-depressant to help ease my muscle pain so i can sleep at night though and she said that is fine.
hopefully when i go see my primary care doctor on the 23rd she will be able to help me.
Ask her to treat you with steroids for undifferentiated connective tissue disease so your body can right itself. UCTD just means that they can't come to a decision about it being Lupus and will treat it as that until your test start showing positive which could take years. The methyl/prednisone stops all the pain and will right your system.
My Rheumatologist said there a lot of people in this world that test negative for years and as many as 8 years before a Lupus diagnosis is confirmed.
The minute I started on the steroids, I felt so much better.
i do have muscle and joint pain. the joint pain is mainly in my hands, wrists and knees and my muscle pain is the worst in my back but i also experience it my legs and arms. my rheumatologist was concerned that my leg muscles are so weak and she did a test to check my muscle enzymes about 2 weeks ago and she said it was completely normal. all of my 'symptoms' have kind of gotten worse with each pregnancy. before i ever got pregnant, i felt perfectly fine. one of my doctors did suggest that there is a possibility that my pregnancies have sort of unmasked the lupus but it is so early in the disease and that may be why it's not showing up on tests. However, i spoke to my rheumatologist yesterday and she told me at this time they have no evidence of me having any diseases, autoimmune or other and as of right now, there really isn't any other testing she can do, which is why she suggested we start trying to look at genetics as a cause.
i do have eye problems but i was born with a condition in my left eye that caused me to essentially be half blind in that eye. i have had surgery on it and after my surgery my vision in that eye with glasses was 20/20. compared to the 20/180 it used to be. but at my last appointment they said my vision has actually gotten a little worse, which i have noticed. at night, my vision gets so blurry it is hard for me to look at a computer or tv. i am also extremely far sighted.
All my test were negative except for one and I was still diagnosed with Undifferentiated connective tissue disease. And you can have what they call negative Lupus which means all test will come up negative but you still have the symptoms.
My MRI was negative and I have severe muscle spasms, so they are looking into MS. You can have a negative MRI and spinal tap and still have MS.
Do you have pain in your muscles or joints?
Do you have eye problems?
Many people with Lupus and UCTD have negative test for years until the disease progresses.
all lupus related tests have been done several times since 2009 and they are always negative.
my ssb and ana were postive at one time but the ana is negative now and my ssb is only at 14 and my rheumatologist said that is too low to be considered a disease.
i am working on my thyroid now. my tsh was 0.31 my doctor said thats a little low so i have an appointment on the 23rd to have more blood work and tests done.
rheumatoid arthritis and sceroderma have both been checked.
but i will look into the other things, thank you.
Have them check your thyroid levels and thyroid function as well as do a Ultrasound on your thyroid to see if you have nodules on it.
* systemic lupus erythematosus,
* Sjogren syndrome,
* Hashimoto thyroiditis,
* rheumatoid arthritis,
* juvenile (type 1) diabetes,
* polymyositis,
* scleroderma,
* Addison disease,
* vitiligo,
* pernicious anemia,
* glomerulonephritis, and
* pulmonary fibrosis.
If you were put on meds before they tested you for lupus or other Autoimmune diseases the test will come out negative. I have UCTD borderline lupus and all my test show negative when on meds.
Autoimmune diseases can cause you to miscarry.
http://www.2womenshealth.com/12-Early-Pregnancy-Problems/12-11-Recurrent-Miscarriage.htm
Try this site for many more reasons for miscarriage.
no, i have always delivered vaginally but i have had many ultrasounds done and they always say my uterus looks perfect. we are just running out of places to look.
I was 23 when i had to have a complete hysterectomy after i had my one and only child, it was devastating, I understand how you feel. The frustration sometimes must be unbearable.
Have they tried giving you a D & C to rid your uterus of the old lining and give it a fresh start.
i know there is always a chance to miscarry whether my children were born alive or not. but to have such late losses is not normal. i have had my folic acid checked and it is always find but i always take my supplements anyway.
i think you are talking about a cerclage which is where they stitch your cervix closed, not the uterus. i am not a candidate for this because i do not have an incompetent cervix, which is painless dilation. i keep going into very early labor and doctors can never stop my contractions. so, even if i had a cerclage i would have to have it removed when doctors could not stop the contractions. i am also considered high risk for infections so a cerclage would actually hurt me more than help. we explored all these options with doctors during my third pregnancy.
When a baby boy is born alive or not, there is a chance that you will miscarry the next child. The other cause that might be Folic acid.
Have they tried to sew your uterus closed?