and you are so right about dwelling on ms ... i tend to overdo and over intellectualize something- reading and researching the crap out of something, then i let it go to a degree - so since this is really only month 3, I think I am doing pretty good as i feel an acceptance and change - not so obsessed.
But yes, giving back is very good - and yes, perhaps to something other than ms ... jsut recognizing that everyone needs support is a good thing.
No one wants to hear about your crap - you're right - the fear factor...and i certainly don't want my art sales to decrease because people are afraid to look at me - haha.
all your words were VERY helpful indeed.
and yes, they did the FULL gammet of testing.
THank you so much for your advice and i will try to continue not to research the heck out of ms - because you are right - it has blocked my creativity - altho as i say, i feel like it's coming back - once i stop dwelling on teh future - that's the tough one.
i have been running/walking for a month now which will defenitely ease the anxiety. phew. those steroids are NASTY!
Yes, I just joined an MS support group - they only meet once a month and it is very small for my little community - but heck at least we have one - and it has a wide range of highly experienced MS'ers. I think it will be helpful. PLus, as you say, it's fun to get out and laugh your *** off with people under similar circumstances ... a place to vent without venting to your husband - like he wants to continually hear about it. haha.
Thanks Kyle as well for chiming in (not charm) - brain atrophy i suppose - haha.
Congrats on losing so much weight - you are right, that can't hurt!!!
Again though, I am so surprised that you were diagnosed with SPMS then haven't had a relapse in 14 months???? WTH? What does your neuro say about that?
Thanks for your response Shell and nice to meet you - I really appreciate hearing from the experienced ones on this forum as well as newbies like myself ... and yes, I don't diss western medicine - just querying is all about what people's experiences are ... I mean, I can read and read 'stories' in a book, but to hear from 'real life' people is really important.
In the end, I will make my way through this little MS maze. Being a chocoholic/sugarholic and dairy freak(while remaining relatively slim, afforded me to be able to eat a little more than i should) ... so believe me when i say, i am not all too pleased about giving those things up - but i also realize it's not that great for you so have REALLY decreased those things for almost 6 weeks now. as you say, it can't hurt.
I would never attempt to 'misinform' or march in somewhere and profess to know - you are right - you read one thing one day, and it could all change the next ... as with most medical wonders ... but especially neurological mysteries. I fully intend to come to the forum often and see what everyone's talking about and hope they all charm in on this one.
You will need a cane in 5 years? So you must have SPMS? But how could that be when you haven't had a relapse in months.
You are right - I have read alot about 'older' males and progression especially without ON ... sorry to hear you fit in that category.
Keep up with the lifestyle changes and hope for the best. Will you try CCSVI?
Enjoy your christmas and thank you for your response.
I'm curious. What does dethrone Denial mean