I deal with annoying symptoms when I get too cold...spastic legs making it very difficult to walk and I can't stop shaking and when I come in to warm up my face feels like it's on fire and deal with weird 'thawing" out symptoms. I also can't handle heat...feel weak and even more dizzy and nauseous. I am not diagnosed.
Hey there, your definitely not alone in being affected by cold temperatures, it happens but most people have issues with heat, do you have issues with both or is it just the cold?
"It's less common than feeling the heat, but some people
do find the cold is a problem. If you are affected in this
way, you might notice sensory symptoms or mobility
issues get worse when you're cold. Even some people
usually more affected by the heat might notice that their
muscles feel stiffer in the cold. Low temperatures might
bring on spasms, or a feeling of tightness in the
muscles.
As with heat, these changes are usually temporary - if
you can find a comfortable temperature, these effects
should fade away.
There has not been a great deal of research into the
effects of cold on MS symptoms, and we don't know for
certain why it happens. But whatever the reasons
behind it, for some people, keeping warm feels more
vital than keeping cool."
https://www.mssociety.org.uk/sites/default/files/Documents/Essentials/Hot-and-cold-temperature-factsheet-Feb-13.pdf
There are many many studies recommending cooling down but whilst getting too cold is acknowledged to worsen muscle spastisity, triggering tremors and pain etc there just isn't the research to explain it, so here's my lay persons explanation.....some MSers temperature gage is totally on the fritz :D
Theoretically getting over heated causes a pseudo relapse, a temporary return or worsening of everyday issues and once you cool down and rest enough, you'll go back to your unique normal again and If you react to cold temps, the pseudo bounce back should happen once you rest and warm up enough.
They actually stopped doing the hot bath test because getting 'overly heated for an extended length of time' can sometimes trigger a full relapse and or take a long time to recover from. It makes sense to me when muscle and nerve fiber's don’t work as well when cold, that getting overly cold could also cause an MSer the same types of problems as overheating can and getting back to their optimum core temperature might be more problematic once the muscle stiffen enough to become spastic.
Personally, i have issues with both hot and cold temps, when i get too cold i look like what you'd expect if someone has hypothermia, it's noticeably over the top for the situation hmmm i don't particularly register that i'm too cold when it's happening because i'm more thinking about getting through the rumbling tremors and painful jerking my bodies doing, i'm definitely struggling with fatigue after my bodies done it's weird again, it usually takes a few days before i feel like i'm back to my normal after i've reacted to the cold.
Hope that helps.......JJ