My cousin passed away

[yorkieville]

I haven't posted in a very long time. Don't seem to be getting any better. Pain meds keep pain almost manageable, as long as I don't get too active.

But that's not why I am posting today.

My cousin Ervin passed away 3 weeks ago. He lived with MS for 18 years. He was diagnosed at the age of 48, and it advanced quickly, long before any of the new treatments could help him. He was in a wheelchair within 4 years of his dx.

I don't know why I am telling all of you, except maybe to encourage you never to give up.

I believe he survived so long because his wife and children and grandchildren gave him the will to live.

A few of us in the family got together on Easter and that day, there were no tears. We shared happy memories of his life.

Still, he is sadly missed.

Hugs,
Sheila

[monotreme]

I am so sorry to hear of your loss.  It sounds like he has a very loving and supportive family.

I truly hope that you can be more comfortable and will get pain relief.

Elaine

[Want to feel well!!!]

So sorry for your loss.  Words cannot take away your sadness.  It is nice to hear he was surrounded by a loving family.

Take care...
Wana
  

[Heather3418]

I am so so sorry to hear about the loss of your cousin.  You and your family will be in my prayers.

I hope that you feel well enough to join us again, full-time.

Best Wishes,
Heather

[young at heart]

SWEETIE,

I AM SO SORRY TO HEAR OF YOUR COUSINS DEATH DO TO MS.ERVIN IS AN INSPIRATION TO ME.WHAT WILL POWER HE HAD.

THANKS FOR TELLING US.

YOUR MISSED DEARLY HERE,HOW ARE YOU DOING? WISH I WAS CLOSER TO HELP YOU.

KEEPING YOU AND YOUR FAMILY IN MY PRAYS,SENDING TO HUGS AND LOVE

T-LYNN

[doublevision1]

My condolences to you and your family.  It is sad to hear about someone suffering so much, so soon after diagnosis, and passing away at a relatively young age.  Stories like this always remind me to be grateful for the DMD's that were not available until the 90's.  There is plenty of reason to be hopeful about one's prognosis, if eligible for DMDs and started on them as soon as possible.  Also, because of the enormous amount of research currently going into better treatments and better understanding of the disease process itself.

db1