Negative MRIs with 1 OCB found in CSF

[Tara4988]

Hello,

I am a healthy 29 year old AA woman who has traveled to over 30 countries and has been healthy as can be until this summer. Starting this June, I had the first of 2 neurological episodes that landed me in the ER. Half of my body on the right side including face, arm, and leg went numb as if the electricity had shut down. The second time this occurred in September, I tried to tell my parents what was happening and my speech was slurred. It was a terrifying experience to say the least. The first time in June, an ER neurologist sent me home with a diagnosis of "atypical migraine". This second time, I got 2 MRIs and after finding nothing, got sent home again with the same diagnosis and told to follow up with a neurologist. Strangely enough, in the coming days after the second incident, I developed symmetrical body-wide numbness and tingling that moved around my body. My toes would fall asleep, then my fingers, my lips twitch when I'm trying to fall asleep, I get spasms in my chest, and sometimes my blood pressure would drop. I also had vertigo and ear pressure that a doctor told me was due to fluid in my ear caused by sinuses. I finally asked my neuro about Lyme disease and after getting tested, my Western blog results came up partially positive for Igm. This led me to getting a spinal tap which revealed a single oligoclonal band in my CSF which the neurologist is saying is normal given the context of the normal MRIs, and normal Igg serum which is actually borderline at exactly the cutoff the lab states (0.6). She definitively said I don't have MS so I'm just lost and unsure where to proceed from here.

Any help would be greatly appreciated. I'm thinking of seeing a Lyme specialist and digging into that deeper too.

[TheLightSeeker]

Hello Tara.
I would look for a reputable LLMD (Lyme Literate Medical Doctor) with a lot of experience in diagnosing and treating
Lymes Disease and/or any of its co-infections
It's like any other field of medicine, where you can get a great Doctor or a lousy one!
You should get a complete Lyme and Co-infections
panel through IGeneX Labs In  Palo Alto CA, as they have been since many years in the forefront of Lyme Disease and its nasty partners, lol!

Best wishes,
Niko

[supermum_ms]

Hi and welcome,

I don't know enough about lyme or any other MS mimics to speculate but because you said "in the coming days after the second incident, I developed symmetrical body-wide numbness and tingling that moved around my body. My toes would fall asleep, then my fingers, my lips twitch when I'm trying to fall asleep, I get spasms in my chest, and sometimes my blood pressure would drop."....its unlikely going to be a neurological condition like MS because the red flags pointing away from MS are things like 'symmetrical symptoms, all over or body wide symptoms, rapidly multiplying different types of symptoms, symptom that spread or moving around etc and if all your MS related test results are not abnormal, your symptom pattern and diagnostic evidence wouldn't be suggestive or inconsistent with something like MS.

All i can suggest is getting a second Migraine opinion and or asking your primary physician what else it could be?

Hope that helps.,,.JJ