Neurological Bowel Problem

[yorkieville]

Hi, Everyone.

Well, I did the 4 week 'Bowel Program', and saw my D.O. last week Wednesday.

First, let me tell you, it literally kicked my butt!  I was so sick throughout the entire 4 weeks. Nauseated, and it made the pain of the Ankylosing Spondylitis unbearable.

But, (yeah, another but), I did learn some things; I have no rectal sensation; Bisacodyl suppositories produce no results, even after the two Bisacdoyl tablets the night before. I have very light intestinal muscle contractions.

Another thing, I discovered, is that stool slips from the rectum into the anal canal, and I do not feel it, and the outer muscle at the anal canal does not relax and allow evacuation.

So, when I went back to my D.O. last week, he said it is a Neurological problem and prescribed Amitiza.

The appointment was a total let down and I went home, so depressed, ready to give up. He was an hour and a half late, and I was not upset with him, but then he barely gave me five minutes.

I had counted on him either ordering tests, or referring me back to my Neuro or G.I. Doc; something more than writing a prescription.

My son called in the evening and he told me that it's time for fresh doctors, because all this one does is write me a 'script every month, masking the symptoms and not diagnosing the problems. He wants us to go forward with our move, and come down to S. IL, and start with doctors there. He said the doctors will refer me to St. Louis, IL, and he is sure they will diagnose me.

So, we are listing our house this week.

In the meantime, I made one more appt. with my G.I. Doc in hopes that he will know what to do based on the results of the bowel program will. I cannot see him until June Th.

So, does anyone know what tests I should expect him to order?  Any tests that might aid in a diagnosis of MS?

I cannot go on this way. I am down to 78#s and have no appetite. When I force myself to eat a small amount, in order to take my pain meds, I am nauseated.

Any thoughts are appreciated.

Sheila

[yorkieville]

Hi, SL.

   I promise you, I am going to get the weight back on! I'm a survivor. Just wait, soon I'll be in here complaining I'm too fat.

  Hugs,
  Sheila

[monotreme]

Hi Sheila,
  I will be leaving shortly for the drugstore and will get back to you.  Please, call the local hospital outpatient services and ask to see a dietician today.  Or can you call the GI doc and ask them to see you today??  

  I was thinking exactly what Quix wrote.  I think you need an IV with nutrition.  Please Sheila, if you would like, I would call the GI doc for you and tell them I am your relative and a nurse and I think it is an emergency to get in to them today.  Your body could go into severe heart rhythm problems or anything.  

  Please pm with me with your phone number if you want and I will be happy to talk to you and call that doctor for you or even call the dieticians for you.  God has this in His hands I know, but sometimes he needs people to get the doctors to move their behinds into gear.  I think God is telling me to do that so I will be happy to help.  

  When I get back from the drugstore I will post.

  Elaine

[Super_sally888]

Oh, and stripping off in front of your DO to show him how thin you are now, aint altogether a bad idea.

S

[Super_sally888]

Hi,

wow, now we're all worried about you.

I think that worrying about the soy in ensure is the least of your problems now.  If it does affect your thyroid meds, all you have to do is increase the dose.

High calorie fluids may be the way to go for now as well as whatever foods you can.  Soft drink and fruit juices instead of water all the time.  Milk is great - drink that instead of water!  Can you handle ice-cream.  Regular fat yoghurt.  Try to eat constantly small amounts.

If you're feeling so nauseated it can also be because your stomach has shrunk, which doesn't help anything.

Can you manually help yourself have BM.  Pressure on the perineum using your hand/fingers can help.

See if you can see the GI doc sooner.

Take care sweetie and fight this with everything you've got.

Sally

[sllowe]

Hey,  you keep on working at it.  You'll get some lbs on, I know it.

I will pray for the right solution to the bowel problem.

So VERY VERY glad to hear about the Dietician! They are the BEST!!!!!!!  Hope you get a good one who works with what you can and can't have, along with the things you like too.  A good one will get in those things you like, but may add or change quantities, or combine a different food group w/some.

thinking about you,
SL

[yorkieville]

Hi, Momma Bear.

   Please don't worry. Rich is home with me 24/7. (And monitoring every bite I eat, even though he thinks I don't see him.)

  My D.O. had delivered a baby boy the morning of my appt. and I think he was very distracted. No excuse, I know. I suspect he 'thinks' I am not eating well, due to the constipation, but that is not the case, I am just nauseated and not hungry. A few bites make s me full. I did tell my Tech that on Monday when he did the MRI of the liver. So, I am hoping he came up with something for my G.I. doc.

That was why I made the appt. with the G.I. Doc, I know this fast weight loss is not good. It worries me, too. I get on the scale, hoping and praying I've gained.

  I do intend to point out to my D.O. that I have lost 10#s since the end of  February. I was at my sisters up in N. IL then and I believe I weighed 88#s and she was upset about that...good thing she hasn't seen me since.

   Please don't worry...Gods got it under control, even though my docs don't.

   Hugs,
  Baby Bear