That's horrible to live with that feeling! The burning parethesias can cause pure agony. I'm happy to hear that it has lessened for you.
The ON I think I've had for a while but diagnosed only on Thursday. The doctor talked about putting a prism in my glasses to help correct the double vision. My pupils look much better today--only a slight difference (I no longer look like Cat Woman at least). My vision is about the same.
I'm on Copaxone and my sister, who has a more severe form of MS, is on Tysabri. She really likes the Tysabri and tells me she's feeling better. She's been on Tysabri about the same time I started on Copaxone--in March 2008. Prior to that, she was on Rebif, which didn't stop the disease progression. She's not quite walking, but I expect as soon as the pain issue goes away, she'll be able to bear weight on the foot that she's had surgery on.
It's soooooo unbelievably freagin' hot here!!!!!! Last I checked it was 107!!!! It's probably about 87 in the house and I'm so sleepy as the result that my eyes are bouncing around and I can barely keep them open. Holy cow!!!!!
Take care of yourself and I'm praying that the nagging pain finally goes away for you.
Deb
Hey there,
I had some madness for a few months, but thankfully it has subsided enough that it's now just a nag. Basically, it was pressure, feeling like water moving around right in the center of my spine, and the skin across my middle back burned to no end, all day. Seemed to affect everything like going to the bathroom, standing in one place, etc. MRI revealed nothing new there and the Dr said it was not really happening, just feels that way due to the lesion in my spine (it's my biggest).
I've learned since then, from here of course it's parethesias. You have to look at that thread, it's awesome! I'm not sure if we've gotten it on a health page yet, but it will be if it's not.
What are you on again? I'm so sorry I'm forgetting, but I do remember your sister is on the infusions right?
I hope your ON resolves shortly.
ttys,
Shelly
I did have a sluggish eye response to light in one of my eyes. This has happened to me twice now. The opthamologist said it could be caused from ON but it was never confirmed that I had it because he believed it might have occurred further back where he could not see.
ON can go away on it's own without steroids but steroids don't prevent damage from occurring. I think it just helps you get over it faster (I think).
Thanks for thinking about me! Yes, I'm the Deb that has a sister with MS. My sister had surgery in early June to permanently fix her ankle in place because of the foot drop. She just had her last cast removed and had a boot placed on that foot. She can't bear weight on that foot yet. She's going to go to a PT for gait training (if she ever starts walking!).
I have an order for a wheelchair, but have never gotten around to get one! I can walk, but the pain in my feet is sometimes unbearable. For some reason, I just won't get myself to the medical supply store to get one and need to get one ASAP before school starts. However, I'm feeling better than usual (even with the 105 degree heat and the optic neuritis). I'm really thankful for the Provigil--it's been a miracle drug for me.
How are you feeling? I hope you're doing well.
Deb
Hey Deb!
Nice to see you! I don't know enough about lot about ON, unfortunately. But do know that many mention the steriod treatment.
How you feeling otherwise?
Was thinking about you too and your sister (praying I've got my Deb's straight this a.m. ...lol).
ttys,
Shelly