SPMS treatments?

[Matheson]

I have SSMS on Amantidine, Baclofen, Tizanadine, Sativex and Ibuprofen. I've had SPMS for 9 years. The past year has been bad - spending more time in bed as spasms are so bad and I feel uneasy in the wheelchair now. Does anyone know of any possible treatments to help manade this?

[addicted2harleys]

Hello, Matheson.  Welcome to our forum.  :)

I am sorry that you are experiencing pain and for your SPMS dx.  I don't have any advice for you in terms of your SPMS as I have very little knowledge about it.  I am sure others on here will be able to relate to it and will comment soon.  

As far as the spasms, well I can relate to those.  :(

I, too, am on Baclofen.  I am sure you know, that is mainly for spasticity.  When I first started having spasms I was put on muscle relaxers.  These have helped some but not enough.  I have tried vicodin and that doesn't touch it.  I have since started seeing a pain management doc.  Maybe you should consider this yourself.  No one has to live in pain.  Not me and not you.  

I had an LP done on Tuesday.  Since then I have been having some pretty strong muscle spasms in my back (I also get them in legs and chest).  Tuesday evening I was taken by ambulance to the hospital due to the spasms.  They were making it difficult to move in any way and also hard to breathe.  I was given morphine.  While I definitely do not want to be on this strong a drug, I will say that it sure helped me Tuesday night.

I have been down in the bed since then, too.  The spasms are still in my back but not as strong.  

I don't know what a couple of the drugs you are on are.  So maybe one is already a muscle relaxer?   If not, that might be an option for you.  Or maybe trying a TENS unit?   Or physical therapy?   A heating pain helps me a little bit.

Anyways, i would definitely encourage you to go see your doc about something to help you through this.  You shouldn't have to live through this symptom.  

Hugs,
Addi  

[Lulu54]

Hi Matheson and welcome to this wonderful community.  I am so sorry to hear that your SPMS is giving you such fits.  I don't personally have suggestions but I hope that someone else here will have some ideas.

I know shadowsister (DJ) has major spasms and got some relief by using celebrex but the side effects of that drug were too harsh for her.   I understand what you are saying about the spasms from my relationship with her - she has had them so bad that she has fractured ribs and vertebrae.

Wish I had more to offer to you.  Lulu