JJ is right, we are very kind and compassionate people who know what it's like to walk in the MS shoes!!! You can't blame us for having our guards up... I know I've fallen for the scams before, as I'm sure may others have. I think if the post had said something like hey I found this and it worked for me check it out, you would have received positive feed back. I hope you will still feel comfortable reaching out if you need us.
Debbie
~live as if all your dreams came true~
I did look at all the positive comments, and I thanked people for them. Maybe I percieved several to be negative. I'm not at all at severly sensitive person. Like I said, just a couple comments made me a little hurt. I cleared that up and was very upfront about what I was doing and how I felt about it. I'm not at all upset about it. I was a little at first, but I heal easily :)
You're right, it really isn't worth any of my time, but I felt the need to clear it up with everyone because I did not want people thinking I was something that I'm not. I thanked everyone for their positive comments before and after I cleared myself up. Some negatives have not been retracted. I recieved personal messages in my inbox that were hurtful. I was told I would not be happy here. And I wanted everyone to know that this one stupid misunderstanding will not make me an unhappy person!
I'm not too emotionally driven. I don't feel that this place is negative. I have talked to some very nice and positive people and I enjoy that. Just the few comments that I got that I felt were wrong that hurt at first. I know that they don't know me and probably never will. I can't take things too personally from people who don't know what I'm all about. I just forgot that for a moment at first, and for a second I actually cared that people thought badly of me. Shame on me. I'll think twice before I share things.
You are obviously upset but please believe me when I say that in the scheme of life its all pretty meaningless and really not worth any of your precious energy or waste of emotions. Stop for a moment and look again at the very very few negative comments and then the responses you thus received when the mistaken impression was cleared up, haven't the negitives been retracted?
I am truely sorry for your hurt, pleased dont let your sensitivities only focus on the negativity, you will surely miss all the positives and out pouring of concern for you. This place is not negative, it is filled with support and wonderful people who know, really know what its like to feel and experience MS, it really is a safe place to fall!!!
Concerned...............JJ
"Anything to make a buck.
I have some swamp land...that cures MS...any interested?"
^ That's probably the line that kind of set me off... If your swamp land cures MS, I'm in!!! I'm not trying to make any money and my husband doesn't make enough money from it for me to promote it! He does his job when he's at work. I wouldn't have spoken of it if there were no science behind it. I've posted links about the science behind it. I've never used any products like this before because, well, they don't work!
Thank you for the apologies. I don't feel they were all necessary, but thanks. I just wanted others to hear what I had to say and maybe look them up. But I thought it would be looked up before it was shot down. I was told by someone who did not post on this forum that I will not be happy in any forum since I talked about this and believe in it. That was upsetting.
No one knows what I go through on a daily basis within my family and friends and I looked over this site and thought this was a good place to learn what others go through and compare to what I go through, a place where people understand what I may be going through...so with that said, thought it to be a good place to share something that helped me and maybe help others.
If I had a way to give a free one to everyone...I WOULD! I know there are skeptics, as was I. But since some meds don't work for me and someone else swears by it, should I tell them that there's no science behind it (even though there is) and accuse them of trying to sell it? You can swear that this one med I'm taking works...but I have no proof! Doesn't work for me.
My husband didn't even know I posted anything until last night when I told him about all the responses. We are a very conservative couple, and I'm typically pretty shy. It was a long shot for me to say anything, but I did. It was also out there for me to join a group like this, but I felt it may help. Yesterday was probably the most negative day I've had in a while. Didn't expect that here.
After reading my first post... I don't think I said anything to offend, I hope you didn't take offense... we are one happy family here fighting the same battle with or without a diagnosis! I am very happy you found help... if I decide to try something in that line I will share my experience. I also don't speak much on this site, I usually read and only respond if I can help or if a question arises that I can't find the answer to so like Alex I appologize to EVERYONE if I said something hurtful!
Thanks for clearing up the sales end of this adventure... I am always leary of someone so excited then ending with and by the way. If you think about it I think you'll understand where everyone was coming from... someone new comes in tells us how great something is and then tells us it's her husbands employer. I'm glad to hear it works for you... my father-in-law told us years ago that he needed a magnetic braclet so my husband and I went out and purchased a very nice one for him... he's never taken it off and swears it works :) My cousin wears the one you speak of and swears by it also. I personally have never tried one. I'm glad you are not trying to peddle on this site... I appoligize if I offended you!
Debbie
~live as if all your dreams came true~