i have asked my dr about CCSVI he says that he doesn't like but feels the answer is out there in stem cell but it isn't ready...yet
I know of two who blew their life savings and progressed after the procedure. In fact, one of the suffered a stroke from the procedure following the Zamboni protocol (no stents used) and is far more damaged from that than from MS. Basically he's a mess. Personally knowing these two outcomes/anecdotes plus dismissing the media hype around it, this is not a path iveever considered going dow.
I await a cure, meaning: better treatments to slow progression; ways to sustainably develop new myelin and to fix damaged axons; ways to shut off the malfunctioning immune response that revs it all up to begin with; better identification of triggers to identify those at risk, with earlier intervention to stave off full blown MS; and a vaccine to prevent future generations from ever developing it. There will be no "a cure" for MS. It is too complex for any one breakthrough to be "the" cure. It's going to need to be a multi pronged approach to kissing this disease goodbye.
The willing suspension of disbelief...:-)
Sadly, this will not mean a lot to the percentage that have spent their life savings on snake oil and the travel to receive it. That's powerful incentive to maintain the cognitive dissonance needed to hold onto this theory. The dwindling few who will likely morph into 'true believers' on the fringes and that's a great pity.
We all desire and deserve answers, progress, and hope, but of the genuine variety, surely. Thanks for posting this, Kyle.
Isn't it fun when our docs make the news, for good not evil? Mine is on the cover of this month's Multiple Sclerosis Journal.
My guess is that Dr. T. won't be recommending the vein roto-router course of acting :-)
Kyle
Thanks for the link. It's particularly interesting to me because Doctor Tony Traboulsee is my MS neurologist. I'll be traveling down to the coast to see him at the UBC hospital MS clinic later this month for my annual appt..
Mike