so absolutely discouraged and worn down !!

[candy158]

Hi, well, it is through teary eyes, that I tell you guys that my infection ( UTI) for those that don't know me)  is back.  My GP does not know what to do.

I will be going back to OPAT ( IV antiobiotics centre) , on Monday, and will see what they say they should do.  

They have talked about an indwelling cathater, and I DON"T WANT THIS !!!   very teary now, what the h*ll is going on, I just don't get it.

I'm supposed to be getting ready to start the Avonex and then my blood came back high in alkaline phosphatese and they held off sending the request, not they say that it is ok, and should start next week.

I don't know if I can take that one too, what if I do get sick from it ??  How will they know what it is from ???

I just don't know what to do now, soooo very discouraged, and lost trust in the Dr's ...

sniffing,
Candy
:(

[karryon55]

I'm so sorry for your loss Candy. My thoughts & prayers are with you during this difficult time. I've just spent the last month with ICU visits & in the end my Aunt passed away. I have found out how much stress can do to a body with MS & RA. It's not like I could have avoided the stress though.

I also do not get how they can blame the super bug on your MS. I have purchased some urine analysis dip sticks so I can check my urine if I have suspicions. They aren't cheap but pretty accurate. If it comes up with positives I send it off to the lab. I was just thinking for your piece of mind that's all.

Hugs......Karen.

[candy158]

yes Corrie, it is a head scratcher, especially when the symptons are all there still, the sweats, chills, pain, back ache, and general feeling of yuckiness( my new word) .... :)  

I don't think it is clear, but what the heck do I know,....... so, will wait and see what happens next, I guess.....

xo

[mikeysmom1995]

Oh Candy,
So sorry for your loss. I will continue to pray for you and your family.
HUGS, BARB

[Corriel]

My condolences to you and your family on your loss.

So the bacteria just disappeared? I don't understand either.

I guess if all is clear now that's a great thing, but a head scratcher for sure.

[candy158]

well guys, they stopped the IV treatment today, said it was an MS attack, and said my urine looked clear.  

I don't get it, on Thursday last week, we had a SUPER BUG and now it is clear.  God only knows what is going on, and I'm to tired to fight back right now, so will just see how we do, emerg. isn't all that far away if we need it.

We lost our Don this morning, he was our SIL's brother, and he was 44 years old and fought the good fight, but lost his battle with colon cancer.

It is a VERY sad day for us right now....

[HVAC]

It sounds rough. I am thinking of you.

Alex