Aa
two plus two....
funny think happened last night...someone forgot to tell me the world had been turned on it's side in the night and when i woke early in the morn. to go to the bathroom, i landed SPLUNK right on what i used to call a wall, but had clearly become the floor!! the world spun for a few seconds and then steadied. i was able to complete my task and return to bed.
hubby hopingly and optimistically asked in the morning "did you have anything to drink last night?"
the answer of course, not a drop. and when have i ever fallen into the wall before anyway, even after having had a drink or two? i felt for him though, as i could tell he was truly hoping this to be the case. this is the first time he has "seen" a symptom and i had him a little unnerved.
i'm beginning to make a link between escalating symptoms and amount of work done.
yesterday i had my cousin and her hubby and their 4 children over for dinner. one of her girls has severe allergies and i'd spent hours prior to her arrival scrubbing all surfaces both indoors and out. the evening was tons of fun, but today i'm feeling it.
had muscle twitches in my thighs this morn., altered sensory perceptions seem to have spread out considerably and i got all teary at work when i realized how little i had accomplished after many hours had ticked by.
oh what a ride!
just thought i'd share my days journey.
lala salama (or goodnight--in swahili).
xoxo michelle
hubby hopingly and optimistically asked in the morning "did you have anything to drink last night?"
the answer of course, not a drop. and when have i ever fallen into the wall before anyway, even after having had a drink or two? i felt for him though, as i could tell he was truly hoping this to be the case. this is the first time he has "seen" a symptom and i had him a little unnerved.
i'm beginning to make a link between escalating symptoms and amount of work done.
yesterday i had my cousin and her hubby and their 4 children over for dinner. one of her girls has severe allergies and i'd spent hours prior to her arrival scrubbing all surfaces both indoors and out. the evening was tons of fun, but today i'm feeling it.
had muscle twitches in my thighs this morn., altered sensory perceptions seem to have spread out considerably and i got all teary at work when i realized how little i had accomplished after many hours had ticked by.
oh what a ride!
just thought i'd share my days journey.
lala salama (or goodnight--in swahili).
xoxo michelle
audrey,
too funny about your boss and the yellow caution tape! it is very nice to be able to laugh about these things with others...
on a serious note, terribly sorry to hear about the broken collar bone incident. i have heard how painful that is. ouch! also, great tips about lights in the dark and balancing against walls...i'll be employing them in the days to come. still incredibly off balance, but nothing as serious as that fall if i go slow enough.
i hadn't even thought about how this would be in the winter yet!? i can only imagine how frightening a prospect walking down a winter sidewalk in this state with osteoporosis can be! i guess a cane for balance wouldn't really help when the world gets tilts right off kilter, would it?
thank you for sharing your experiences audrey. here's hoping the earth pays attention to our pleas!! lol!
xo michelle
too funny about your boss and the yellow caution tape! it is very nice to be able to laugh about these things with others...
on a serious note, terribly sorry to hear about the broken collar bone incident. i have heard how painful that is. ouch! also, great tips about lights in the dark and balancing against walls...i'll be employing them in the days to come. still incredibly off balance, but nothing as serious as that fall if i go slow enough.
i hadn't even thought about how this would be in the winter yet!? i can only imagine how frightening a prospect walking down a winter sidewalk in this state with osteoporosis can be! i guess a cane for balance wouldn't really help when the world gets tilts right off kilter, would it?
thank you for sharing your experiences audrey. here's hoping the earth pays attention to our pleas!! lol!
xo michelle
Thanks for sharing and glad to hear that you did not get hurt by your fall.
I've had balance problems for 8 years now. A former boss put up yellow caution tape around the French doors to his office! LOL...at least we had a good relationship and I do have a sense of humor, so that it did not offend me. In fact, I relate this to others when I tell them that I have balance problems.
Dr. does not think these issues will resolve themselves. It is scary for me, because I have osteoporosis at a very early age and am fearful of breaking bones with the wrong kind of fall. I did break my collarbone a few years ago when I fell getting up out of bed to answer Mother Nature's call. Very painful to say the least and the bruises were unbelievable in terms of color and size.
Now I take every precaution I can think of to minimize the risk of falling, including turning on lights at night...no more walking in the dark for me! Winter, with ice, is the scariest time for me.
Like Paula, I make sure that there is a wall close to me as a safety feature in the event that I do lose my balance. This happened last week when I was closing the front door and literally fell to the left. I placed my hands on the wall to slow the fall, but almost knocked a floor lamp over in the process.
Unlike you, I cannot make a correlation between exertion and symptoms. For me, it just happens. Sometimes it's just a wobble while I am standing still and other times it is a complete loss of balance while moving.
So yes, Earth, get back on your axis and spin just a little bit slower for me and others like me.
Audrey
I've had balance problems for 8 years now. A former boss put up yellow caution tape around the French doors to his office! LOL...at least we had a good relationship and I do have a sense of humor, so that it did not offend me. In fact, I relate this to others when I tell them that I have balance problems.
Dr. does not think these issues will resolve themselves. It is scary for me, because I have osteoporosis at a very early age and am fearful of breaking bones with the wrong kind of fall. I did break my collarbone a few years ago when I fell getting up out of bed to answer Mother Nature's call. Very painful to say the least and the bruises were unbelievable in terms of color and size.
Now I take every precaution I can think of to minimize the risk of falling, including turning on lights at night...no more walking in the dark for me! Winter, with ice, is the scariest time for me.
Like Paula, I make sure that there is a wall close to me as a safety feature in the event that I do lose my balance. This happened last week when I was closing the front door and literally fell to the left. I placed my hands on the wall to slow the fall, but almost knocked a floor lamp over in the process.
Unlike you, I cannot make a correlation between exertion and symptoms. For me, it just happens. Sometimes it's just a wobble while I am standing still and other times it is a complete loss of balance while moving.
So yes, Earth, get back on your axis and spin just a little bit slower for me and others like me.
Audrey
COMMUNITY LEADER
About what time was it when the world tipped off its axis? You see, yesterday after helping out for a few hours at my mother-in-laws garage sale, i noticed the drive way was no longer flat but significantly tilting to the left, well it was either that or my right leg had grown an extra inch or two during the day and thats why i was always off my target. lol
I think this is one of the hardest lessons to learn, minimal output = maximum or escalating symptoms, I think just about everyone is still trying to find the right balance, so your not alone there.
Only good thing about almost killing my self, is we made over $500 selling off the clutter, bad thing was my mother-in-law constantly asking if i wanted to borrow her walking stick and advising me on the benefits of ME having a walking frame, this is coming from a women on her way to 80 and she still wont use them, ta very muchly lol.
Cheers.......JJ
PS. laughter is the best medicine
I think this is one of the hardest lessons to learn, minimal output = maximum or escalating symptoms, I think just about everyone is still trying to find the right balance, so your not alone there.
Only good thing about almost killing my self, is we made over $500 selling off the clutter, bad thing was my mother-in-law constantly asking if i wanted to borrow her walking stick and advising me on the benefits of ME having a walking frame, this is coming from a women on her way to 80 and she still wont use them, ta very muchly lol.
Cheers.......JJ
PS. laughter is the best medicine
thanks paula!! you crack me up! i love the bit about it having been all over the news!
look at us nighthawks...suppose i should get some rest now.
have a great night and all the best for tomorrow!
xo
look at us nighthawks...suppose i should get some rest now.
have a great night and all the best for tomorrow!
xo
lol seems I like my name so much I wrote it twice or forgot I wrote it so I won't sign my name this time
Sorry for the world turning on its side...it was all over the news, I thought everyone heard about it. lol
I know the feeling. Sometimes I litterally bounce off the walls walking down my hallway. Most of the time I have my hands out and touch the walls as I walk to keep my balance.
I am glad you can laugh about it. I came to the conclusion to either laugh or cry. Sometimes they look at me like I am crazy when I laugh cause to them it isn't funny but what else am I suppose to do.
I cried in the beginning and then realized this is my life and I need to laugh it off. Especially when my toes or fingers do their little dance. Now I have everyone laughing when they dance, I asked my son one time if he wanted to dance with them lol.
It is hard when people first see your symptoms, but I have tried to educate my family on the symptoms that I have. My neurologist even gave me so books (brochures) on MS to help me understand what it is even though I haven't be diagnosed. I told my family to read them so they have a better understanding.
Take care and hang in there...
Paula
Paula
I know the feeling. Sometimes I litterally bounce off the walls walking down my hallway. Most of the time I have my hands out and touch the walls as I walk to keep my balance.
I am glad you can laugh about it. I came to the conclusion to either laugh or cry. Sometimes they look at me like I am crazy when I laugh cause to them it isn't funny but what else am I suppose to do.
I cried in the beginning and then realized this is my life and I need to laugh it off. Especially when my toes or fingers do their little dance. Now I have everyone laughing when they dance, I asked my son one time if he wanted to dance with them lol.
It is hard when people first see your symptoms, but I have tried to educate my family on the symptoms that I have. My neurologist even gave me so books (brochures) on MS to help me understand what it is even though I haven't be diagnosed. I told my family to read them so they have a better understanding.
Take care and hang in there...
Paula
Paula
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