very concerned

[someqs17]

Hi,

I'm concerned about potentially having MS. The symptoms lasted for a few days and then they subsided. One week ago I started experienced extreme dizziness and some fatigue again. This is extremely abnormal for me.

The reason I'm concerned about MS is because a few days ago I started getting tingling/numbness in my legs. My legs also feel very weak. This has lasted for several days. Also, I read that heat can make MS worse...well, after I took a hot shower today, I started feeling worse and now all my leg muscles feel really sore and achy.

So, dizziness plus muscle weakness plus tingling. I am very worried. I went to my primary doc today and he thought these symptoms sounded too vague and wanted to put me on antidepressants.

I'm really concerned though-- I do not feel like myself, and something is wrong.

Any thoughts?

[MarisaV]

I don't have MS, but I do have Systemic Lupus. I had all the same symptoms you have (and more) when they finally diagnosed me. Was even told to go see a psychologist several times too. I've probably had Lupus most of my life (about 30 years), given my recurring symptoms.

I'm not saying you have Lupus. But just want you to know that Lupus can cause symptoms like MS (I thought, initially, that I might have had MS), except for the joint pains, and  that its very difficult to properly diagnose Lupus. I was told three times that I definitely did not have Lupus. The forth and fifth time I was tested, however, all the stars aligned, and I was eventually diagnosed with it. I suffered with these bizarre symptoms, intermittently, for 30 years.

So, don't let the doctors beat you down, or destroy your confidence in yourself. If you continue having symptoms, keep reporting them to you doctors. Eventually, they'll figure it out.

Hope this helps some.

Mar

P.S. Last time I saw a Psychologist (because my doctor refused to treat me anymore unless I saw one), when I told the Psychologist why I was there, he rolled his eyes and said, "Doctors are always sending me patients because they think its a conversion disorder. Its very rare, almost no one has that."

This is now the second psychiatric professional that's said that too me in my life.

[Lulu54]

what is the outcome of all those tests that were run besides the MRI?   RA or Lupus should still be in the differential from the sounds of your symptoms.

  It sounds like the doctors are doing their best to reassure you that it doesn't look or sound like MS to them.  I'm sorry that doesn't seem to give you any relief and this is still a source of concern for you.

Vision problems?  If they continue, see if you can be checked by a neuroopthamoligist who can give you a very thorough exam.  

Have you read our health page on what neurologist have to consider when looking at possible MS?  It would be worth you while to take the time to see what else is there that might also fit your problems -

http://www.medhelp.org/health_pages/Multiple-Sclerosis/What-Neurologists-Must-Consider/show/1219?cid=36

be well, Lulu

[someqs17]

I'm bumping my thread b/c I've been having really frustrating eye symptoms recently and have had, for many weeks prior, other symptoms of MS.

My eye symptoms are weird...it feels like my eyes aren't coordinating with each other and it's hard to watch tv or do anything really...also, for the last few days my left eye feels sore and hurts to the touch. I'm concerned its that nystagmus or optic neuritis associated with MS. Went to the optemetrist and she did some test on my optic nerve and said it wasn't normal, but that I'm very near sighted so it's not always normal in those people, and that I need visual field testing, which I'm doing next week.

I'm concerned...I was scared enough when I had dizziness, tingling, muscle and joint pain, and muscle weakness...but now my eyes are worrisome. Do these eye symptoms seem typical of MS?

I got another script for an MRI, but it was only of the brain and w/o contrast. going to see a new neuro in 2 weeks, should i ask him to also check c-spine?

[someqs17]

I went to see a neurologist today, and he didn't take me very seriously. I had low blood pressure and he tried to pin all my symptoms on that -- really? I need a new one. Anyway, he re-wrote me a script to get an MRI done on a 3.0Tesla MRI instead of the 1.0Tesla which was good. However, he only wrote it out for Brain w/o constrast. I asked him "what about the cervical spine?" He said it wasn't necessary. I asked if he could do it anyway, and he refused. First of all, WTF, and second of all, is the brain alone sufficient or should I try to get my original dr to write me a new prescription for the brain/cerv spine w/ contrast??

[someqs17]

Oye. So I did some reading on the MRI strength and how that makes a difference. Well I called the MRI place I had mine done at, and they said it was a 1.0? Seriously? From what I've read the lowest is like a 1.5. This place was solely for MRIs...how could they have such a weak machine?!??!

[someqs17]

really? i've read that joint pain and muscle pain can be a manifestation of MS. I thought i saw that on webmd. i feel like i also have a lot of the other symptoms...all of a sudden...dizziness, fatigue, vision problems, tingling, muscle weakness...and yeah, the the muscle and joint paint...