worried about my copaxone again...

[meg321]

This is for Lu and anyone else who may have gone off  copaxone due to allergies or any other reason.

I just worry and I have not heard from my MS Dr. yet..its only been 4 days, but copaxone has been so good to me unless it is causing my allergies.  

I just don't know how long I can do this  ??

hugs, meg

[meg321]

I just saw my MS dr yesterday and I am going to wait two weeks and if the hives continue, i can start the copaxone

If they do not, i will go on Tysabri...

Yes, Lu, i am so tired of them !!

hugs, neg

[Lulu54]

Hi Meg,
sorry I've been scarce and am just now seeing this.  Have the hives resolved since you stopped taking the copax?  It stinks that this problem has continued - you've had those darn hives for way too long.  

take care, Lulu

[jensequitur]

Hey, Meg - I use Betaseron now.  It's an interferon which lowers the immune system activity.  They want you to get a blood test every six months.  The minuses include flu-like reactions and a weak immune system, so they recommend staying away from sick people.

[sllowe]

Meg, are you hiveless now 9 days out?

[meg321]

I was just wondering what you are using now in place of the copaxone?

thanx, meg

[meg321]

Thats interesting, I was wondering if I could take it less than once a day.  I really need to talk to my MS dr..i made an appt for the 13th.

I have been off of it for 9 days now and still not sure what to do.  I never minded the large welts, but i almost convinced it is causing my hives.

meg

[Willowwoman777]

I'm on it, but don't take it everyday as it causes large red raised welts, and insomnia...I'm one of the lucky 10% that gets insomnia from it. lol But my doc is ok with me having it every few days because it's better than not being on anything.

[jensequitur]

Hey, Meg - what sort of problems are you having with Copaxone?

I had the site reactions, which were red, raised welts (about three inches in diameter) that itched for three days.  I also had the IPIR, which is an immediate post-injection reaction.  After the fifth one, it began to resemble an allergic reaction (itching and swelling) so I discontinued it.

But as far as I know, Copaxone doesn't cause any other reactions.

[huff1711]

I was on copaxone from November 09 till this past July. I was lucky I guess since I didn't have any allergy problems with it. The reason I stopped taking it was the medicine wasn't doing any good for me. Then I started Tysabri, not sure if it's going to do any better, but it's supposed to be the best medicine available. I sure as heck don't miss having the welps or knots on my thights from the Copaxone shots.

I hope you can find something that helps you without any problems on the side.

Chad