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Brain Stem Glioma - Treatment options?

9 year old girl is diagnosed 1.5 years ago with the brain stem glioma, originally pontine, but now spreading to midbrain as well.  The only treatment she received is 4 sessions of chemo (no radiation).   It appeared that the chemo stopped the tumor growth, but the latest MRI shows new extensions and infiltration into the surrounding regions.  Due to the location and spreading of the tumor, it was deemed non-operable by the local medical staff and she was discharged from the hospital.  Today she collapsed and was taken to an ICU...

Is there any (standard, clinical trial, experimental) treatment option available at this point?

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Avatar universal
Thank your for your prayers and words of encouragement!  Her name is Diana and she needs a miracle now... Amazingly, her condition greatly improved soon after I posted the original message, but I know it's not for long... Please continue your prayers!
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533799 tn?1213238700
I am praying for your daughter, please believe in the power of prayer.  I have 5 young children and can not imagine the pain you are going through.  My children and I said a special prayer for your daughter tonight.

God bless!   HV
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Avatar universal
what is her name... I need to pray for her for some reason I wanted to google left hemishere abnormalities for my daughter that has had a hell of a time. For some reason your cry out for help has reached me in VA and all I can do is pray for her cause I have no medical training , other than life it's self. Praying is what I acn offer and I would be glad to do it! tell me her name and I will. thanks and god bless,kim L
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