Child with anhidrosis

[magicallilly]

I found this blog.. hoping to get some kind of guidance.. my grand daughter has anhidrosis.. three years old.. it was my daughter and I.. who figured it out.. and it has been confirmed by her pediatrician.. and a dermatologist.. neither of them.. really have any information to give us.. just that.. there is no cure..
However.. there are tons of questions that need to be addressed..  and no where to go..

Any information.. will be appreciated..
Carol

[Paderla Anitha, DNB]

Hello and hope you are doing well.

Mam, Understand your predicament. Try these links:
www.***********/conditions/anhidrosis/
http://www.ncbi.nlm.nih.gov/sites/ga?disorder=ANHIDROSIS

And Good Luck.
Hope this helped and do keep us posted.

[magicallilly]

Thank you for taking the time to explain what you know about anhidrosis.
I really appreciate that.
Since Hannah is only three.. she cannot verbalize how she actually feels physically.. I was wondering, if you know of a support group, consisting of people who have this disorder, so we could get more of an understanding, of how they actually feel ..  we don't know .. if we keep her in a cool place.. which we do.. and she still has hot skin.. is she feeling ok??  Or is she feeling 'hot' .. it just seems that if we could talk to adults who have it.. we could get answers as to how it really feels to have this.. .. the human experience so to speak!
Any suggestions?  Even a book written on the subject would be helpful.  
Thanks again for your support.  Carol Rice

[Paderla Anitha, DNB]

Hello and hope you are doing well.

Understand your predicament. Anhidrosis is the inability to sweat normally, is quite rare and difficult to diagnose. Some genetic disorders cause sweat glands to malfunction. Hypohidrotic ectodermal dysplasia, an inherited disorder, causes the body to develop with few/no sweat glands. Therapy is mainly focused on avoiding overheating the body and dealing with consequent symptoms like heat cramps or heat exhaustion.

Hope this helped and do keep us posted.