Constant head pressure dizziness/motion sickness, tingling/burning scalp, for months

[Dave_Boro]

In April/May I had been drinking a lot of coffee (4 cups or more a day). I don't know if the coffe is related but suddenly in mid-May my head started to feel weird (like very cloudy/muffled... like I wasn't even there). Then I started getting motion sick constantly even just from seeing things move or people touching me. There was a lot of head pressure too (like my head wanted to cave in). After a week, a friend suggested meclizine. It did not help. Then the right side only of my scalp started tingling all over (never had this before in my life). That day I felt a few stabbing pains in my right eye but not unbearable (just momentary, the other symptoms were constant an unbearable). That night my right scalp throbbed. There was little to no pain. A few days later my left side of my forehead started to feel numb or like there was something touching it. It's October now and this still hasn't stopped. When I'm having these issues I have unbearable head pressure, I can't stand to wear glasses (even my computer glasses) and my brain just refuses to work... very very hard to function/think. The most prominent symptoms is the feeling of pressure on my forehead now or tingling in my scalp. Sometimes it feels like a band across the entire head or the entire head is tingling, sometimes it feels like hot water on the forehead. Rarely is there any pain. I think pain would be better (at least I can understand that and take medicine for that). Let me be clear, this has been constant since May. It has not stopped. It was severe at times and has waned sometimes but come back stronger at times (like today). The past few days were bad and the symptoms were different. It felt more like my head was burning. I checked my temperature but it was normal. I have had an MRI (no issues), EEG, video EEG. I've been told to go back on zoloft (25 then 50). I was told to take topamax (first 25 and then 50). I have had basic bloodwork from my family doctor but nothing came back odd except high b12 (it's always at least 2x normal). I went to a LLMD (lyme literate medical doctor) in June. I've been on Azithromycin for 2 months, rifampin for another month, ceftin for another half month and I have not improved (I tested negative for lyme at my family doc with the CDC criteria and I'm beginning to think the IGENEX test have a tendency for false positives). My Neurologist said this is a "migraine variant" but I have 2 problems with it. 1. the medication has done nothing (he even gave me a tapered dose of prednisone starting at 80 mg but the problem did not go away). 2. This feeling is so terrible I just cant stand living like this. It is that bad. If not for kids the easy way out would be very attractive. I can't understate just how miserable I am. This doesn't sound like typical migraine: no pain and migraines don't usually last 5+ months. I feel like something got damaged but the above mentioned tests are all that I have had done. Please help me. I am finding it so hard to work and I don't know how much longer I can keep this up. By the way, I have also tried a ton of supplements (but none have made a difference): 5-MTHF (Folate), Alpha Lipoic Acid, B1, B5, B6, Biotin, Chromium Picolinate, Copper, COQ-10, D3, Fish Oil, Ginger, Glycine, Iodine, Licorice Root, L-Methionine, Manganese, MethylCobalamin, Molybdenum Glycinate, NAC, Olivirex, Pregnenolone, Selenium, Chlorella, Licorice Root, Magnesium Malate, Niacin, Reduced L-Glutathione, Salt pills, Silymarin (milk thistle).