Desperate for Help-Cant live like this

[westcoastinc]

7-8 Years ago this all began

-I began have having blurred vission in my left eye
-Hands began tingling became sensitive to hot and cold, sensitive to pressure,it began to get worse and worse now lifting or basic use causes pain, there frozen at night in a claw like shape
-same thing began happening to my entire body

-burning
-tingling
-sharp pains
-sensitive to pressure
-muscle spasams
-genral pain
-at night time im under a non stop attack of all these symptoms at the same time its extremely violent

-one of my first symptoms was lose of bowl control diaherra for 8 years

-Ive passed angiongrams,ct scans,heart scans,seen the best experts in the province for my stomach,for MS for everything and I passed everything including every type of blood test and MRI's

Ive been given up on and thrown out like a piece of trash nobody believes me, my doctors try sending me to a shrink and say im makin it up and the tests show nothing ive been living in extreme pain for 8 years now.  I can barely work and because of the diaherra I cant go out.

I dont know what to do?

[rockinhippy]

should of also said alcohol in foods to watch, few of us can tolerate it, half a beer will have me flaring & back in bed in no time

[rockinhippy]

I also would  suggested Fibromyalgia, though agree Lymes is worth looking into, Fibromyalgia is a more common answer to your symptoms, look at some websites on it, & see if you fit with the tender point tests?

if so from experience I would suggest trying Epsom salt baths to increase magnesium in your system, looking at yoyur diet, you may notice triggers to pain & stomach problems, common 1s being chemical food additives, wheat, diary, meat, nightshade family, reduce your salt intake........ eating more pottasium rich foods to help cramps...my GP suggested Tonic water, but good chocolote, bananas & often  salt substitutes are high in pottasium, Spirulina is good too, lots of B12, iron & Pottasium in it & good stomach enzymes that aid digestion..........5htp can help with sleep, taken half hour before bed, & pacing rest & activity, avoid stress like the plague, & generally be kind to yourself...........Manual Lymphatic drainage massage, Accupunture & yoga are also useful tools in dealing with it...........not a cure, but can go a long way to easing your symptoms

good luck, I hope you find your answers & get some help soon

[tropicalllily]

possibly fibromyalgia?

[wonko]

If standard medical testing has failed to find an explanation, you may want to consider seeking a doctor who specializes in identifying/diagnosing and treating late-stage Lyme disease and associated infections.  The testing for Lyme is not regarded as reliable by all physicians.  

Many folks with late-stage Lyme go through nightmarish years similar to what you describe-with full body disabling symptoms but pristine medical testing.  While Lyme is spread mainly by ticks, it's also not unusual to not recall a tick bite or distinctive rash.  

I would suggest that you check out the website for the International Lyme And Associated Diseases Society, ilads.org, to read more about this.
  
Whatever is making you so sick, I hope you find answers and relief.