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Going crazy here.. twitching, numbness, cramps, vibrating all over body

Going crazy here.. twitching, numbness, cramps, vibrating all over body. Been to ER many times. Just went to Neurology and had the nerve test and the DR looked puzzled at what is going on with my right leg, they said it was not nuropathy tho as i do have type 2 diabetes. Here a list of that i have been dealing with since June 2009

Pain that travels around body
Numbness in hands and legs
Twitching all over
I went to ER because i had intense spasms in bladder
Vibrating in hands and feet
Head busting pains in my face and jaw
Muscle twitching in legs and hands, i can see it, like popping under skin
Some times i feel like my leg is not there
Sometimes i get pain from any kind of activity
I have had 2 centrally hurnated discs, L4-L5-S1 since 2005
I have had weeks of vertigo
TMJ
Panic attacks
Feelings of unreality
Feeling of falling when in bed
Zaps in head that are scary
Shocking sensations
Unreal crushing back pain
Sciatica

I take benicar for HBP, blood sugar is controled well with diet but i think im lacking some kind of nutrition since i started this diet in june around the time all this started. I take mega does of B12, C, Magnisum and COq10 but nothing had helped.

I have had EKG's of hart that show some slight abnormality, but a CT angogrom said my hart was fine, i had CT scan of abdomin that was fine. Like i say nerve conduction test shows some issues with right leg but they have not called me back yet, Tested negative for Lyme. Im going insane here, fear of ALS or MS.. Or who knows what. I have ether constipation or extreme gas and runs, im a mess and losing it. I live in constant fear and anxiety. I have been in a state of nervous break down for half a year over health and life stress. Told i have PTSD, Anxity, Stress and all the rest.

Is there any hope?

Sorry for spelling and gramour mistakes, im freaking out here
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Avatar universal
Just bit more info

I have had blood work done 5 times this year, all seems good. I have a tight grip on my blood sugar, testing 3 times a day, it's never over 140 post food and fasting is between 80 to 100 always.

My blood pressure is always between 140/90 and 120/70 if stressed it gets higher tho.

I do not take any kind of anti depressent. I take only benicar for my bp.

Right now in dealing with twitching in legs arms and feet. I have pain in my jaw and have some issues swollowing. I have had the problems swollwing for years, but now with all these issues combined I fear ALS. The fact the nuro doc had a hard time getting any results with the NCS on my right leg is what sent me to freaking out.

I won't know anything till Monday. I keep tight control over my health and this is some thing I can't handle at all.
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Avatar universal
I might add that whomever is giving you your blood pressure meds, just go to him, he's really the one you need to see THE MOST, and while you're there, ask him about Lyrica samples, just see if something like that helps you, and later you can pursue a doc about getting long-term prescription for that.  Just go to your BP doc for the labs, too, on your sugars and vitamin and electrolyte numbers.  GG
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Avatar universal
Doesn't matter what your "diagnosis" is.  Anytime your lower back is goofed up, you're gonna feel it in your legs, and if you're like me, the pain is fierce.  SOMEbody, like a regular family doctor, ought to give you SOMEthing for the pain.  And no need to wait around for those folks to figure you out.  The same family doc can draw blood and check your blood pressure meds, which is absolutely crucial at the moment, and all the other labwork I mentioned.  I forgot to mention in my last post, but your blood pressure can give you headaches.  Now, if you don't have a regular family doc, just go down to the county health department as a walk-in, you can be seen the same day for what ails you, and maybe get some treatment going, altho they may be reluctant to give you opiates, but they will give you Lyrica, kills low back pain like nobody's business, lots of times they'll have samples.  Just be sure to tell them and maybe produce papers that say you got that disk problem in your lumbosacral spine.  GG
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Avatar universal
fear of ALS or MS is killing me..

Like i say,at the EMG/NCS  refused to tell me anything till the other Dr calles me, they had a lot of trouble getting any results with my right leg, and the one dr doing the test said "This cant be right" and i said "Is it me or the machine" She told me, "It could be booth" My HART DROPPED! Since then i have been in a state of unreal fear. Im going CRAZY here.

The nuro Doc did tell me i had not out ward signs of any disorder, all kinds of motor tests were 100% ok. They only wanted to test me for nuropathy but told me I DID NOT HAVE THAT
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Avatar universal
Well, since you have diabetes, obviously your regular doc needs to draw blood and doublecheck your sugars, also check your vitamin and mineral levels, since you yourself say your nutrients may not be up to par.  You said you started a diet to control diabetes (I think that's what you meant) about the time all this started and since you have digestive issues, something about that diet does not agree with you.  Lack of proper nutrients and indigestion can make you feel really whoozy and dizzy, which is similar to your sense of unreality and falling whilst in bed.

I think your blood pressure medicine has got to be adjusted or changed, too.  This is because the EKG showed some problems, even tho the angiogram was okay.  If your pressure is off, then that is what will cause those feelings of panic.

If you happen to be on an antidepressant, SSRIs can cause those shocky feelings in the body and head... also missing a dose or stopping those drugs can cause zaps.  So, have your doc review all your prescribed meds and their side effects, and maybe switch you to other kinds of medicines, depending on which drugs might be bothering you.

The lumbosacral spine disk herniations are what's causing all your leg sensations and back pain.  If you do not wish to do surgery, you can wear a back brace from the pharmacy when you're up and about, and you can take some very good drugs that will kill the pain, to include not only opiates, but also especially the anti-seizure type nerve drugs.  I have piercing and hateful lower back pain, and only thing that helps it is Lyrica and Neurontin, which are cousins, but Lyrica is expensive.  Side effects are kind of wild, you lose balance and feel dizzy and sometimes sleepy, so timing and amount of dose are crucial... they also have to be upped in dose in the first few months until you reach a tolerance and plateau of comfort.

Could be your TMJ is how come you feel pain in your head and jaw.  It's also quite possible that the joint is so out of control, that it's affecting your inner ear where the balance mechanism is, so thus your vertigo.  You can go to an ear nose throat (ENT) man, and have him check our your TMJ and also discuss medicines for vertigo.

To recap, you've got several separate issues that are driving you nuts:  You're feeling lots of anxiety from your blood pressure medicine being inadequate, you're in pain from your goofed-up spine, your nutrients and diet are no good, plus your diabeties sugars may be off, and could be some other medications you take are affecting your sense of well-being.  I remember I got really sick with a bunch of stuff one time, and took me quite a while to get everything straight.  I thought I had some major disease, but it was just a collection of relatively minor stuff (except my busted up back was major) that all conspired to pretty much wreck my life for a while there.

Set up some doc appointments, perhaps follow the little post I have here as to what all they should be doing to help you, and in the meantime, here's a few suggestions to help you feel better right now:  
1.  Panic can be relieved by doing deep breathing techniques.  Breathe in really deep, blow it out, breathe normal a couple breaths, repeat ten times.  This will slow down the heart and thus knock back anxiety.  
2.  Forget the diet thing, except for the usual diabetic concerns, and try eating some of this stuff:  Whole grain bread or oat cereal, brocholli is a miracle food, if you can eat blueberries as a snack, drink some Acidophilus milk or Activia yogurt for a couple weeks, eggs are also a miracle food, salads, and just a little bit of orange juice or an orange depending on your diabetic needs.  
3.  You need to exercise regularly and you need to drink at least five glasses of water daily as a habit.

Hope you get better soon.  Probably the most important things to do straight away is your blood pressure medicine needs adjusting (get a squeeze-in emergency appointment), then you have got to get adequate pain relief drugs going.  Oh, one more thing, when your back is really hurting, lay down flat on the floor and scoot up close to a chair and lay your legs in the seat, let your arms drop to the side.  This takes ALL the pressure off your back and helps you feel better for a few hours.  Keep us posted!

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Avatar universal
one more thing, 35 YO male
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