Help for atypical Trigeminal Neuralgia

[Bozena]

Hello to all,

I have atypical Trigeminal Neuralgia since very long time and nobody helps me.

Doctors say it is all from neck muscles but where from are neck muscles, nobody knows.

I am sleepy, tired, my face is swollen (also strange looking) and pains are in the eyes (more right eye), face and right shoulder.

Who has or had the same?

Bozena

[Bozena]

Hello Dr:Navneet,

Sorry I came here. There is no help for me and even if yes it is too late.

In fact I was searching Forum for Euthanasia.

Bye,
Bozena

[Bozena]

Hello DrNavneetMD,

Thank you for advice.

I don't have any attacks. My pains are steady. They come from bottom of the neck (right side) and go direct to the right eyes.
Beside that I have also Occipital and Subscapular Neuralgia.

Neurologists here say, that all is OK (from neurological view). I had two Neurologists (one in abroad and other here from Russia, 1998) and only those two did help me. With injections (on the bottom of the neck right). In abroad it happened long time ago and here the Russian doctor was only two years: 1997-1999. Our Neurologists don't give injections.

I must say what helps me: pills for muscle spasm with hydrocloride.

Bozena

p.s. I would like to post two links where are my pains (how they look like) but don't know where?

[Bozena]

www.drshankland.com/pain_disorders_tmj.html - 35k

Hello Paul,

Thank you for reply.

This is atypical TN and not typical TN. I don't have pains like from heaven but have steady pains (somewhere compressed nerve, in the neck). Neck muscle on the right side is always swollen. It is true that I have heard it could be from kidney but also from liver (there are few small cysts).

Bozena

[DrNavneetMD]

Dear,
Trigeminal neuralgia  is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips,
There are some things that you  can do to minimize the frequency and intensity of TN attacks:

Apply ice packs or any readily available source of cold to the area of pain. Cold often numbs the area and will reduce the pain.[citation needed]
Get adequate rest in normal rest cycles.
Manage your stress well and keep stress levels low. When you feel a TN attack coming on, try to relax immediately.
Practice healthy living principles such as diet and exercise.
nose, scalp, forehead, and jaw.
Consult your neurologist for medication and hope you get well soon.

[PaulMD]

Hi there.

I'm sorry that you are facing this problem for a very long time.  From what you are describing, I think that this maybe more than trigeminal neuralgia, as TN does not cause facial swelling and fatigability symptoms.  Another cause is a primary myopathy of your face and neck muscles, muscle strain, or systemic diseases such as autoimmune disease or kidney problems.  I suggest you discuss this with your doctor, or possibly with a specialist (neurologist).  Rehabilitation exercises can also help decrease the pain and I also suggest you seek a physical therapist for this.

Regards and God bless...