Hey Pacatex189, i ran across your post as i was trying to figure out my situation. You described my symptoms perfectly. I had dental work done 5 weeks ago, which seemed to trigger the problems. 10 days ago, a fever blister appeared. The pain started in my ear, and is only on the left side of my face. Skins is ultra sensitive. The pain and sensitivity seems to come and go. Not sure if you ever found an answer to your problem....but i wanted to let you know you are not alone in your symptoms.
Best wishes
Look up crps (complex regional pain syndrome) also known as rsd.
I am finding relief with Zonegran and Lyrica combined. I have had this for 21 years. I take the Lyrica in the evening and the Zonegran before bed.
I found several things that make it worse: eating high glycemic foods and not getting enough sleep.
I have a situation similar to yours. I suffered a brain injury 4 yrs ago and suffered terribly with hypersensitive skin on the left side of my body and face. I was on Lyrica and stopped when I no longer suffered from it. Over the years I would feel it only when sick with a cold or flu. Now out of nowhere it's starting to come back on the RIGHT side of my face, ear, neck, shoulder and armpit. It's sickening. My hair cannot touch my face it hurts so much! they did that electro zapping test thing on my arms with no results. Several MRI's and tests and still nothin.
I have been plagued by unilateral areas of hypersensitive skin for over 21 years now (I'm 46). At first I thought it was ear infections as the pain often started deep inside one of my ears. After nothing showed up on physical exam I was sent to a neurologist for CT scans and he told me that I probably had trigeminal neuralgia with glossopharyngeal neuralgia as well. When I research those diagnoses, they don't fit my pain type. The pain is often on one side of my head or the other, it spreads over the course of hours and days, involves my scalp to a level that I cannot touch or brush my hair, as every hair follicle hurts. My eye will hurt to move and sometimes I can feel my food scraping one side of my throat on its way down. Occasionally these pain patches will happen on areas of my torso, legs or arms. Darvocet used to work for me with pain control but now it does not help at all. I've also found that often these attacks are triggered by dental work or cleaning. Often they are preceded or in conjunction with a fever blister in my nose or on my lip. When I research post-herpetic neuralgia, my symptoms and pain type don't really fit that either. I would love to know how to resolve this or at least know what to take when I feel it coming on, and to know what it is and what is causing it.
To netnet979, I believe the name is cutaneous allodynia.