Lumbar puncture,then blood patch,now neck pain/headache

[wannabmommy]

I posted  yesterday about some other symptoms(urinating problems)due to the blood patch.I had a lumbar puncture done Friday(I have MS) and then had to go back on Saturday for a blood patch for a spinal headache.My headache went away instantly.This afternoon I started getting a lot of neck pain almost like muscle pain and it went into my head.Now I have a turmendous headache again especially when I sit or stand.Could it be possible that I need another blood patch or could it possibly just be from muscle spasms etc.Do you know of patients that had a blood patch and the headaches went away and came back like a day later?Thank you very much  

[Sen231]

I am experiencing similar neck pain and right side headache after 3 rd spinal tap and no luck with medications other than giving temporary relief. please update if something has worked for you.

Thanks
Sen

[aiMelissa]

I and a lp done about 4 weeks ago and went in 2 days later for a blood patch.  I was told by to dr doing the patch that sometimes they need to repeat it but she's never had to do more than 2 on a patient.  I hated it so I went home and stayed in bed for the next 2 days, only getting up to go to the bathroom.  

They said that bedrest is good because the CSF leak can heal itself.  I still have headaches if I am up for along time, and a stiff neck.  My neuro gave me neurontin to try for the headaches.  I don't notice a difference yet though. I was also told to drink caffiene or take excedrin migraine.  

GL, hope you feel better

[ShakinThingzUp]

Yes, I've heard when blood patches did not take or hold.... and more than one were required.  The best advice I can give is to: 1 - Stay in contact with your doctor, and 2 - Lie FLAT as much as humanly possible.  CSF leaks can and often do seal on their own without a blood patch.  But, this won't happen unless you lie flat and give it the chance.

God Bless!
Amy