I realize I have a very rare form (or severe would be a better word) however, I unfortunately have RSD flare ups in many places on my body. They always are near a "nerve line" not sure what you call that, and I'm not talking about shingles. However, my doctor thinks that due to having so many back surgeries in so many places, shoulder surgery, wrist surgery, and due to also having Arachnoiditis, when RSD flares up on me, sometimes I can barely stand a sheet to be on top of my legs. Once I went for an ultrasound therapy (at physical therapy) and when the therapist put the ultrasound thing on my back I thought someone had hit me with a 2 by 4 wooden post!!! Not only was there pain, but I had the stinging, burning, tingling, horribly painful reaction to just a mild touch of that ultrasound probe thing (not sure of the name. However, my legs, from the hips down, have been absolutely tested as having severe RSD. I get the change in skin color and temperature....sort of a blueish/reddish color that seems to be so thin looking and swelling of my legs from the knees down. It's horrible. I wish they had a cure. I wish it hadn't taken me almost a year to be diagnosed. Living with this is horrible.
Sincerely,
Lil plum
(my cherokee indian name.... most people wonder where that name came from)
Hello.
Usually RSD symptoms are not wide spread. They occur mostly in the area where there was an initial injury or surgery.
Have you been diagnosed to have RSD? How did it all start?
Regards