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Hi,
I am new on this board. I have been going through so many tests without answers and I am very anxious.
For the last few months I thought, any day now, my Neuro was going to call me to tell me that I have MS. Now I dont know.
Symptoms & Tests.
3 MRI's in the last 6 months - lesions, neoropathy, etc.
Migraines for 20 years
Arms and legs go numb, tingle, loss of strenght, especially right arm
RIght Optical nerve damage - glacoma ruled out.
Profoundly tired
Dry eyes
WInded even going up one flight of stairs
Pernious Anemia - B12 injections weekly
48 female, mom, wife, accountant.
Active until recently because I am increasingly tired.
On Friday morning I left work early because I was feeling weak and my Neuro tracked me down on my cell phone. He wanted me to proceed immediately to the Hospital to get a CT Scan with Contrast. He said the blood test he gave me showed an abnormal reading for the test called Voltage-Gated Calcium Channels.
The CT Scan results I was told ruled out Pulmary Embolism. But the Neuro was going to call me Monday to go over 'other things'. Upon my web searching, I pulled up Myasthenia Gravis. Does anyone have any more thoughts? I want to be prepared for tomorrow.
Thank you,
Jean
I am new on this board. I have been going through so many tests without answers and I am very anxious.
For the last few months I thought, any day now, my Neuro was going to call me to tell me that I have MS. Now I dont know.
Symptoms & Tests.
3 MRI's in the last 6 months - lesions, neoropathy, etc.
Migraines for 20 years
Arms and legs go numb, tingle, loss of strenght, especially right arm
RIght Optical nerve damage - glacoma ruled out.
Profoundly tired
Dry eyes
WInded even going up one flight of stairs
Pernious Anemia - B12 injections weekly
48 female, mom, wife, accountant.
Active until recently because I am increasingly tired.
On Friday morning I left work early because I was feeling weak and my Neuro tracked me down on my cell phone. He wanted me to proceed immediately to the Hospital to get a CT Scan with Contrast. He said the blood test he gave me showed an abnormal reading for the test called Voltage-Gated Calcium Channels.
The CT Scan results I was told ruled out Pulmary Embolism. But the Neuro was going to call me Monday to go over 'other things'. Upon my web searching, I pulled up Myasthenia Gravis. Does anyone have any more thoughts? I want to be prepared for tomorrow.
Thank you,
Jean
I received the Dx today of Lambert-Eaton. You got it right. I have a referal to Mayo Clinic in MN for treatment protocol.
Thank you very much.
Jean
Thank you very much.
Jean
Hi there.
The test for voltage gated calcium channels is for Lambert-Eaton myasthenic syndrome and is different from Myasthenia gravis. Myasthenia can explain some of your symptoms such as the tiredness and the loss of strength. Form the other symptoms you described I am more inclined towards an autoimmune disorder which is affecting several organ systems. Pernicious anemia can be caused by atrophic gastritis which is in turn be caused by autoimmune diseases. Myasthenia gravis is also part of an autoimmune syndrome that targets muscle receptors. I suggest you discuss this angle of autoimmune disorders with your doctors.
Regards and God bless.
The test for voltage gated calcium channels is for Lambert-Eaton myasthenic syndrome and is different from Myasthenia gravis. Myasthenia can explain some of your symptoms such as the tiredness and the loss of strength. Form the other symptoms you described I am more inclined towards an autoimmune disorder which is affecting several organ systems. Pernicious anemia can be caused by atrophic gastritis which is in turn be caused by autoimmune diseases. Myasthenia gravis is also part of an autoimmune syndrome that targets muscle receptors. I suggest you discuss this angle of autoimmune disorders with your doctors.
Regards and God bless.
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