Weird symptoms no answers

[tooshy42]

I am a 42 year old female.   started out with tingling, numbness on the left side of my arm. It also feels very heavy at times along with twitching in my fingers and hands. I also developed tingling, numbness, burning sensations down my leg. Later pain was in my tailbone and butt area.  I managed these but became a little frightened when I started having a "pulling" or tightness feeling on the left side of my face.  I went to my primary Dr, she immediately ordered a CT scan and MRI of my brain.  Both came back normal and she sent me to a neurologist.  The neurologist said it was stress and nothing to be concerned about.  None of this went away but would wax and wane.  I let it go for a month or so and then I had what I thought was a sinus infection/ear infection, only to find out after the xray was taken that I had neither.  However, I had extreme pain and fullness in my face and ear along with the off and on pulling and tightness.  I kept asking my doctor if it was possible I had a pinched nerve because I also had neck pain on the left side.  She ordred an MRI of my cervical spine  Revealed some herniation of several discs.  Nothing to be really concerned about according to my doc and she said it would not cause my face pain/symptoms. She sent me to a orthopedic doctor, first one told me I needed immediate surgery and scared me half to death with fear to move my neck the wrong way or I would sever my spinal cord.  Got a second opinion, he felt nothing serious and to wait and see if my symptoms progress or go away, see you in 3 months and ordered a MRI of my lower spine due to the leg and butt pain.  Of course, he put me at ease and I chose to beleive the non-surgical option.  After this appointment, my lips started to experience numbness along with my tongue and nose.  It felt as though I had been given a shot of novicane at the dentist.  I called the 2nd ortho and told him this and he referred me to a different neurologist.  Neuro doc looked at brain MRI and cervical MRI, and did testing for MS and other things.  He felt confident it was not MS and that he did not know what was causing this.  He did nerve and muscle testing on my left and right arm.  All normal.  He said face pain may be from trigeminal neuralga(sp?).  He put me on Tegretol and said see you in 3 months. None of these symptoms have gone away and I now am experiencing extreme pressure in my chest and have constant indegestion, which i have never had before along with pains that take my breath away in my rib cage and back.  Have had stress test and it was normal, so it appears to not be the heart.  Im very frustrated and concerned that something is being overlooked. I have had what seems to be every test imaginable and nothing yet has explained my crazy symptoms.  I do not have my doctors results from the lower spine mRI yet but  the report they gave me  states a hemagioma was incidentally noticed at the T12 disc area.  Don't know if that is significant for any of this or not.  I know this is very long but any help would be appreciated.  Desperate for answers and relief.

[hipchick47]

I am 48 yrs old and have the exact same symptoms as you, I went to my Dr who did bloodwork, all normal except an elevated B12, he wants to refer me to a neurologist, I have been diagnosed with Fibromyalgia, because I also have multiple joint arthritis and had a hip replacment at 45 yrs old, but the numbness, tingling and burning in face, tips of fingers and toes all on left side started, also having some confusion at times, I hope they can find out what is going on, other than that I am a very healthy, active person, good blood pressure, good cholesterol, not overweight, etc

[Jules77733]

Hmmm...what's your medical history? Any family members who have/had similar problems or diseases like diabetes or high blood pressure? I'll see what I can find regarding hemagiomas in that region, but I'm not able to comment on it yet since I don't know all that much about them.

[tooshy42]

I have had my B12 levels, calcium and thyroid checked.  They say all is within normal limits.,

[Jules77733]

Hi, I'm sorry to hear that you're going through so much. While I can't comment on the hemagioma until I've read up on the topic a little more, I was wondering what bloodwork you've had done, to date? Specifically, have you had your Vitamin B12 and calcium levels measured? Have you had a thyroid panel done?