Where to go from here/Sugg Welcome

[Padro46]

Sorry So Long,  Just want to know has anyone else been involved with this kind of thing before and if so what can been done to find the answer??



November 2008-- Present Time: Still having minor AB and Chest Pains, Bowel Movements just not the same as prior to Dec07,  Back of the head numbing and brain
freeze/tingling, seems to have also moved to my face and jaw area, seem to be having
some balance issues not always but does happen.  Minor back pains, Brain Fog (Just
seem to be out of it). Vision appears to be worse/blurry up close, (have been to eye
doc no change)  Still tired but not as severe as early in the year, Un- refreshing
sleep, Sore Back(seems to always need popped, Periodical a stopped up head feeling
and very minor pain in and around ears. Will sometimes have tenderness in Lymph
nodes in Neck, Armpit and Groin. There are no factors that seem to change the above
it can be morning or evening seems to progress as the day goes on.  Do not have all
symptoms at the same time but have some of them everyday.   Results of testing are
enclosed for your review.    
                                                  
History I am 47 years of age 6 FT-190 pounds, weekend beer drinker and a reformed
smoker (quit in Jan 07) Up to Dec 07 NO health problems, had probable been to a
Doctors Office 10 times total in my life.  In Dec 07 I was on a business trip in San
Antonio, Tx when I began experiencing symptoms (all of a sudden like someone flipped
a switch) that included the following. Chest Pains and Burning (felt hot to the
touch) Back of the head numbing and what felt like an Ice Cream brain freeze.  I
also had this out of it feeling like a BRAIN FOG.  Not wanting to have a problem in
another town, I left and returned home 7 hours away.  My wife drove me to a clinic
where I was put on a EKG machine and the clinic Doc advised all ok gave me some
Meclizine put me back on Prevacid (which I had been on years earlier) for Acid
reflux and sent me on my way.  At this time I did not have a Primary Doc and made an
appointment with one.  This doc did Complete Labs, and found nothing but elevated
EBV numbers.  Doc advised would look at numbers again in 30 days due to this being a
Virus there was nothing else to do but Time also gave me some sinus sprays.  This
was a REALLY BAD time from the months of Jan-May I felt terrible, Chest Pains which
really had me concerned, TIRED all the time could not wait to get to the bed or
couch, loss of appetite, cold all the time, Dizzy/Lightheaded, back of the head
pain(really bad that a aspirin would not help) , AB Pains, Irregular Bowel movements
(still everyday but not as much product), Facial numbness/tingling, Brain Fog, Did
not want to do anything.  These was of great concern and due to not EVER having
medical issues I returned several times to my family doctor and the following are
the test and medications I have been on during this experience.

Test: Blood Test-X 5   CBC, Comprehensive Metabolic Panel, Lipid, PSA, TSH, Lyme, HEP Panel, HIV Panel, Rheumatoid Arth. Factor, Sedimentation Rate-Westergren, EBV Panel, B-12, Alpha Fetoprotein Serum, H. Pylori. From the months of Jan08 to the last one Sept08

Results:  With exception of EBV numbers (which all Docs say is no longer a concern)
and up and down Cholesterol LDL sometimes a little high--- ALL NORMAL XRAYS and CT SCANS--  MRI-(April08)  Brain(Normal)  November 2008 with Contrast all normal and C-Spine-(May08) (see results under other)
CT scan Heart (Feb08) and Abdominal (June08 Prior to Colonoscopy) ---All Normal
Chest X-ray X 2    (June 08) this one remarked a few calcified granulomas are
present. The Second (April08) listed Brocades otherwise No acute Cardio disease
identified. Colonoscopy and Endoscopy (June08) —Acid Reflux No other problems
identified ENT exam (Sept 08) - All Normal Full Cardio Work-up (Feb08) Echo and CT
scan, Carotid Artery Ultrasound- All NormalL Medications: That I am currently
using—Prevacid, (Acid Reflux) Dicyclomine spastic colon-(only three times did not
like side effects) some natural meds by Dr. Jernigan’s Borrelogen, Nutrametrix-OPC,
Fish Oil Tablets.  Nortriptyline (Pamelor) Not taking----Topamax    Other: C-spine Impression: Neural
Foraminal caliber is low normal or mildly narrowed throughout the cervical spine.
This appears to be the result on congenital factors as I see no evidence of facet or
uncovertebral hypertrophy.  Disc morphology is well maintained, as is spinal canal
diameter.  Have also seen an Infectious Disease Dr. and a Second M.D  2nd MRI of the Brain Neg.  MRA of Brain Neg  Waiting on Lupus Panel

[Padro46]

I hope you are right about the Rhemmy

[selmaS]

Yes I agree with that, the rheumitoid dr I went to found many issues that I had going on that none of the other drs I had gone to could find....so I will cross my fingers that u will get answers.


Godspeed
"selma"

[Padro46]

Maybe The Rhemmy will be of more help in Feb than the Nuero I hear they are more of a Med Detective as it relates to medical issues

[selmaS]

steroids?...is that the meds?....oh my....well....go with ur gut.u have to b comfortable with ur treatment.

Since it is a possibility u have CFS....stop by the fibro/CFS forum.....others there may be able to relate and offer more insight.

Merry Christmas!!
"selma"

[Padro46]

Second Nuero did not really disagree with the first other than to say he would not give steroids just to be giv

[selmaS]

WOW!! ....what a bunch of u know what!!! Goodness.....I can totally understand u if ur were more than surprised!...sigh ....
This is y I am an advocate of getting copies of all reports....and educating myself on what is happening and having an understanding as to what the dr should be looking for.....remember to be checked for fibro as well.

Like she suggested...stick to  the plan they mapped out for u, but ask many ?'s.....

I'll keep my finger's crossed.

Good luck
Godspeed
"selma"